The Influence of Caregiver Distress and Child Anxiety in Predicting Child Somatization in Youth with Functional Abdominal Pain Disorders

por Love, Sarah C., Mara, Constance A., Kalomiris, Anne E., Cunningham, Natoshia R.
Publicado 2019

The Barriers Assessment Tool—A Patient-Centered Measure of Adherence Barriers in Pediatric Kidney Transplantation

por Varnell, Charles D., Hooper, David K., Mara, Constance A., Modi, Avani C., Rich, Kristin L.
Publicado 2023

Careful: An administrative child welfare and electronic health records linked dataset

por Beal, Sarah J., Nause, Katie, Ammerman, Robert T., Hall, Eric S., Mara, Constance A., Greiner, Mary V.
Publicado 2022

Key predictors of the need for a family‐focused pediatric epilepsy adherence intervention

por Bakula, Dana M., Junger, Katherine W., Guilfoyle, Shanna M., Mara, Constance A., Modi, Avani C.
Publicado 2022

Feasibility and acceptability of an innovative adherence intervention for young adults with childhood-onset systemic Lupus Erythematosus

por Harry, Onengiya, Crosby, Lori E., Mara, Constance, Ting, Tracy V., Huggins, Jennifer L., Modi, Avani C.
Publicado 2020

The psychosocial impact of COVID-19 within the first six months of the pandemic on youth with epilepsy and their caregivers

por Modi, Avani C., Patel, Anup D., Stevens, Jack, Smith, Gigi, Huszti, Heather, Guilfoyle, Shanna M., Mara, Constance A., Schmidt, Matthew, Wagner, Janelle L.
Publicado 2021

Mobile health use predicts self-efficacy and self-management in adolescents with sickle cell disease

por Hood, Anna M, Nwankwo, Cara, Walton, Ashley, McTate, Emily, Joffe, Naomi, Quinn, Charles T, Britto, Maria T, Peugh, James, Mara, Constance A, Crosby, Lori E
Publicado 2021

The Americleft Project: Burden of Care from Secondary Surgery

por Sitzman, Thomas J., Mara, Constance A., Long, Ross E., Daskalogiannakis, John, Russell, Kathleen A., Mercado, Ana M., Hathaway, Ronald R., Carle, Adam C., Semb, Gunvor, Shaw, William C.
Publicado 2015

Effects of the COVID-19 Pandemic on Caregivers of Young Children with Sickle Cell Disease Enrolled in the Engage-HU Trial

por Hood, Anna M, Hildenbrand, Aimee K, Rebitski, Joanna, Stallworth, Jasmine, Johnson, Yolanda, Gomes, Stacey, Whitacre, Catharine, Mara, Constance A, Shook, Lisa M, Quinn, Charles T., Raphael, Jean L., Yates, Amber M, Badawy, Sherif M., Thompson, Alexis A., Smith-Whitley, Kim, Hartung, Helge, King, Allison A., Creary, Susan E, Bhasin, Neha, Reader, Steven K, Meier, Emily R., Tubman, Venee N., Crosby, Lori E.
Publicado 2021

Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial

por Hood, Anna M, Strong, Heather, Nwankwo, Cara, Johnson, Yolanda, Peugh, James, Mara, Constance A, Shook, Lisa M, Brinkman, William B, Real, Francis J, Klein, Melissa D, Hackworth, Rogelle, Badawy, Sherif M, Thompson, Alexis A, Raphael, Jean L, Yates, Amber M, Smith-Whitley, Kim, King, Allison A, Calhoun, Cecelia, Creary, Susan E, Piccone, Connie M, Hildenbrand, Aimee K, Reader, Steven K, Neumayr, Lynne, Meier, Emily R, Sobota, Amy E, Rana, Sohail, Britto, Maria, Saving, Kay L, Treadwell, Marsha, Quinn, Charles T, Ware, Russell E, Crosby, Lori E
Publicado 2021