Parents’ understanding of genome and exome sequencing for pediatric health conditions: a systematic review

por Gereis, Jessica, Hetherington, Kate, Ha, Lauren, Robertson, Eden G., Ziegler, David S., Barlow-Stewart, Kristine, Tucker, Katherine M., Marron, Jonathan M., Wakefield, Claire E.
Publicado 2022

What’s in a Name? Parents’ and Healthcare Professionals’ Preferred Terminology for Pathogenic Variants in Childhood Cancer Predisposition Genes

por Hunter, Jacqueline D., Robertson, Eden G., Hetherington, Kate, Ziegler, David S., Marshall, Glenn M., Kirk, Judy, Marron, Jonathan M., Denburg, Avram E., Barlow-Stewart, Kristine, Warby, Meera, Tucker, Katherine M., Lee, Brittany M., O’Brien, Tracey A., Wakefield, Claire E.
Publicado 2022

Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives

por Wakefield, Claire E., Hetherington, Kate, Robertson, Eden G., Donoghoe, Mark W., Hunter, Jacqueline D., Vetsch, Janine, Marron, Jonathan M., Tucker, Katherine M., Marshall, Glenn M., Broom, Alexander, Haber, Michelle, Tyrrell, Vanessa, Malkin, David, Lau, Loretta, Mateos, Marion K., O’Brien, Tracey A., Ziegler, David S.
Publicado 2023