“I Want That Life a Lot…How on Earth Do I Get That?” Examining Challenges for Men With Barth Syndrome in Their Transitions to Adulthood

por Mazar, Iyar, Moorman, Sara M.
Publicado 2021

Development and content validity of the Barth Syndrome Symptom Assessment (BTHS-SA) for adolescents and adults

por Gwaltney, Chad, Stokes, Jonathan, Aiudi, Anthony, Mazar, Iyar, Ollis, Sarah, Love, Emily, Shields, Alan
Publicado 2021

Patient-reported preferences for oral versus intravenous administration for the treatment of cancer: a review of the literature

por Eek, Daniel, Krohe, Meaghan, Mazar, Iyar, Horsfield, Alison, Pompilus, Farrah, Friebe, Rachel, Shields, Alan L
Publicado 2016

Understanding the life experience of Barth syndrome from the perspective of adults: a qualitative one-on-one interview study

por Mazar, Iyar, Stokes, Jonathan, Ollis, Sarah, Love, Emily, Espensen, Ashlee, Barth, Peter G., Powers, John H., Shields, Alan L.
Publicado 2019

Patient-Reported Outcomes in Metastatic Breast Cancer: A Review of Industry-Sponsored Clinical Trials

por Krohe, Meaghan, Hao, Yanni, Lamoureux, Roger E., Galipeau, Nina, Globe, Denise, Foley, Catherine, Mazar, Iyar, Solomon, Jeffrey, Shields, Alan L.
Publicado 2016

Development of symptom-focused outcome measures for advanced and indolent systemic mastocytosis: the AdvSM-SAF and ISM-SAF(©)

por Taylor, Fiona, Akin, Cem, Lamoureux, Roger E., Padilla, Brad, Green, Tanya, Boral, Anthony L., Mazar, Iyar, Mar, Brenton, Shields, Alan L., Siebenhaar, Frank
Publicado 2021

Psychometric performance of the Primary Mitochondrial Myopathy Symptom Assessment (PMMSA) in a randomized, double-blind, placebo-controlled crossover study in subjects with mitocho...

por Gwaltney, Chad, Stokes, Jonathan, Aiudi, Anthony, Mazar, Iyar, Ollis, Sarah, Love, Emily, Karaa, Amel, Houts, Carrie R., Wirth, R. J., Shields, Alan L.
Publicado 2022