Cell therapies for Duchenne muscular dystrophy: some ethical issues for personalised medicines

por McCormack, Pauline
Publicado 2010

Setting up strategies: patient inclusion in biobank and genomics research in Europe

por McCormack, Pauline, Kole, Anna
Publicado 2014

New Recommendation on Biological Materials Could Hamper Muscular Dystrophy Research

por McCormack, Pauline, Woods, Simon
Publicado 2016

Precaution, governance and the failure of medical implants: the ASR((TM)) hip in the UK

por Wienroth, Matthias, McCormack, Pauline, Joyce, Thomas J
Publicado 2014

Improving the informed consent process in international collaborative rare disease research: effective consent for effective research

por Gainotti, Sabina, Turner, Cathy, Woods, Simon, Kole, Anna, McCormack, Pauline, Lochmüller, Hanns, Riess, Olaf, Straub, Volker, Posada, Manuel, Taruscio, Domenica, Mascalzoni, Deborah
Publicado 2016

International Charter of principles for sharing bio-specimens and data

por Mascalzoni, Deborah, Dove, Edward S, Rubinstein, Yaffa, Dawkins, Hugh J S, Kole, Anna, McCormack, Pauline, Woods, Simon, Riess, Olaf, Schaefer, Franz, Lochmüller, Hanns, Knoppers, Bartha M, Hansson, Mats
Publicado 2015

Guidance in Social and Ethical Issues Related to Clinical, Diagnostic Care and Novel Therapies for Hereditary Neuromuscular Rare Diseases: “Translating“ the Translational

por McCormack, Pauline, Woods, Simon, Aartsma-Rus, Annemieke, Hagger, Lynn, Herczegfalvi, Agnes, Heslop, Emma, Irwin, Joseph, Kirschner, Janbernd, Moeschen, Patrick, Muntoni, Francesco, Ouillade, Marie-Christine, Rahbek, Jes, Rehmann-Sutter, Christoph, Rouault, Francoise, Sejersen, Thomas, Vroom, Elizabeth, Straub, Volker, Bushby, Kate, Ferlini, Alessandra
Publicado 2013