Increasing access to specialty care for rare diseases: a case study using a foundation sponsored clinic network for patients with neurofibromatosis 1, neurofibromatosis 2, and schw...

por Merker, Vanessa L., Dai, Annie, Radtke, Heather B., Knight, Pamela, Jordan, Justin T., Plotkin, Scott R.
Publicado 2018

Awareness and agreement with neurofibromatosis care guidelines among U.S. neurofibromatosis specialists

por Merker, Vanessa L., Knight, Pamela, Radtke, Heather B., Yohay, Kaleb, Ullrich, Nicole J., Plotkin, Scott R., Jordan, Justin T.
Publicado 2022

CLRM-16 PATIENT-FOCUSED DRUG DEVELOPMENT IN NEURO-ONCOLOGY: A PILOT STUDY OF QUALITATIVE PATIENT INTERVIEWS EMBEDDED WITHIN A NEUROFIBROMATOSIS 2 CLINICAL TRIAL

por Merker, Vanessa, Von Imhof, Liesel, Park, Elyse, Babovic-Vuksanovic, Dusica, NghiemPhu, PhiOanh [Leia], Yohay, Kaleb, Plotkin, Scott
Publicado 2022

Evaluating the Impacts of Patient Engagement on Health Services Research Teams: Lessons from the Veteran Consulting Network

por Merker, Vanessa L., Hyde, Justeen K., Herbst, Abigail, Solch, Amanda K., Mohr, David C., Gaj, Lauren, Dvorin, Kelly, Dryden, Eileen M.
Publicado 2022

The impact of the COVID-19 pandemic on neurofibromatosis clinical care and research

por Radtke, Heather B., Klein-Tasman, Bonita P., Merker, Vanessa L., Knight, Pamela, Ullrich, Nicole J., Jordan, Justin T., Korf, Bruce, Plotkin, Scott R.
Publicado 2021

Bevacizumab Treatment for Meningiomas in NF2: A Retrospective Analysis of 15 Patients

por Nunes, Fabio P., Merker, Vanessa L., Jennings, Dominique, Caruso, Paul A., di Tomaso, Emmanuelle, Muzikansky, Alona, Barker, Fred G., Stemmer-Rachamimov, Anat, Plotkin, Scott R.
Publicado 2013

Quantitative Assessment of Whole-Body Tumor Burden in Adult Patients with Neurofibromatosis

por Plotkin, Scott R., Bredella, Miriam A., Cai, Wenli, Kassarjian, Ara, Harris, Gordon J., Esparza, Sonia, Merker, Vanessa L., Munn, Lance L., Muzikansky, Alona, Askenazi, Manor, Nguyen, Rosa, Wenzel, Ralph, Mautner, Victor F.
Publicado 2012

Pain correlates with germline mutation in schwannomatosis

por Jordan, Justin T., Smith, Miriam J., Walker, James A., Erdin, Serkan, Talkowski, Michael E., Merker, Vanessa L., Ramesh, Vijaya, Cai, Wenli, Harris, Gordon J., Bredella, Miriam A., Seijo, Marlon, Suuberg, Alessandra, Gusella, James F., Plotkin, Scott R.
Publicado 2018