Factors influencing recruitment to research: qualitative study of the experiences and perceptions of research teams

por Newington, Lisa, Metcalfe, Alison
Publicado 2014

Researchers’ and Clinicians’ Perceptions of Recruiting Participants to Clinical Research: A Thematic Meta-Synthesis

por Newington, Lisa, Metcalfe, Alison
Publicado 2014

The Process of Disclosure: Mothers’ Experiences of Communicating X-Linked Carrier Risk Information to At-Risk Daughters

por Goldman, Amy, Metcalfe, Alison, MacLeod, Rhona
Publicado 2018

A family systems approach to genetic counseling: Development of narrative interventions

por MacLeod, Rhona, Metcalfe, Alison, Ferrer‐Duch, Mariangels
Publicado 2021

Parents’ Experiences of Receiving the Initial Positive Newborn Screening (NBS) Result for Cystic Fibrosis and Sickle Cell Disease

por Chudleigh, Jane, Buckingham, Sarah, Dignan, Jo, O’Driscoll, Sandra, Johnson, Kemi, Rees, David, Wyatt, Hilary, Metcalfe, Alison
Publicado 2016

Training Genetic Counsellors to Deliver an Innovative Therapeutic Intervention: their Views and Experience of Facilitating Multi-Family Discussion Groups

por Eisler, Ivan, Flinter, Frances, Grey, Jo, Hutchison, Suzanne, Jackson, Carole, Longworth, Louise, MacLeod, Rhona, McAllister, Marion, Metcalfe, Alison, Patch, Christine, Cope, Buddug, Robert, Glenn, Rowland, Emma, Ulph, Fiona
Publicado 2016

Co-designing models for the communication of genomic results for rare diseases: a comparative study in the Czech Republic and the United Kingdom

por Costa, Alessia, Franková, Věra, Robert, Glenn, Macek, Milan, Patch, Christine, Alexander, Elizabeth, Arellanesova, Anna, Clayton-Smith, Jill, Hunter, Amy, Havlovicová, Markéta, Pourová, Radka, Pritchard, Marie, Roberts, Lauren, Zoubková, Veronika, Metcalfe, Alison
Publicado 2022

Correction to: Co‑designing models for the communication of genomic results for rare diseases: a comparative study in the Czech Republic and the United Kingdom

por Costa, Alessia, Franková, Věra, Robert, Glenn, Macek, Milan, Patch, Christine, Alexander, Elizabeth, Arellanesova, Anna, Clayton‑Smith, Jill, Hunter, Amy, Havlovicová, Markéta, Pourová, Radka, Pritchard, Marie, Roberts, Lauren, Zoubková, Veronika, Metcalfe, Alison
Publicado 2022

Developing an intervention to facilitate family communication about inherited genetic conditions, and training genetic counsellors in its delivery

por Eisler, Ivan, Ellison, Matthew, Flinter, Frances, Grey, Jo, Hutchison, Suzanne, Jackson, Carole, Longworth, Louise, MacLeod, Rhona, McAllister, Marion, Metcalfe, Alison, Murrells, Trevor, Patch, Christine, Pritchard, Stuart, Robert, Glenn, Rowland, Emma, Ulph, Fiona
Publicado 2016

International consensus statement on the diagnosis and management of autosomal dominant polycystic kidney disease in children and young people

por Gimpel, Charlotte, Bergmann, Carsten, Bockenhauer, Detlef, Breysem, Luc, Cadnapaphornchai, Melissa A., Cetiner, Metin, Dudley, Jan, Emma, Francesco, Konrad, Martin, Harris, Tess, Harris, Peter C., König, Jens, Liebau, Max C., Marlais, Matko, Mekahli, Djalila, Metcalfe, Alison M., Oh, Jun, Perrone, Ronald D., Sinha, Manish D., Titieni, Andrea, Torra, Roser, Weber, Stefanie, Winyard, Paul J. D., Schaefer, Franz
Publicado 2019