The EPIRARE proposal of a set of indicators and common data elements for the European platform for rare disease registration

por Taruscio, Domenica, Mollo, Emanuela, Gainotti, Sabina, Posada de la Paz, Manuel, Bianchi, Fabrizio, Vittozzi, Luciano
Publicado 2014

Characterization and classification of Rare Disease Registries by using exploratory data analyses

por Coi, Alessio, Santoro, Michele, Lipucci, Michele, Bianucci, Anna Maria, Gainotti, Sabina, Mollo, Emanuela, Vittozzi, Luciano, Taruscio, Domenica, Bianchi, Fabrizio
Publicado 2014