Management of pain in Fabry disease in the UK clinical setting: consensus findings from an expert Delphi panel

por Stepien, Karolina M., Broomfield, Alexander, Cole, Duncan, Deegan, Patrick B., Forshaw-Hulme, Stuart, Hughes, Derralynn, Jovanovic, Ana, Morris, Liz, Muir, Alison, Ramaswami, Uma
Publicado 2023

Quality of Life with Late-Onset Pompe Disease: Qualitative Interviews and General Public Utility Estimation in the United Kingdom

por Hubig, Lena, Sussex, Anna-Katrine, MacCulloch, Alasdair, Hughes, Derralynn, Graham, Ryan, Morris, Liz, Raza, Syed, Lloyd, Andrew J., Sowinski, Amanda, Gallop, Katy
Publicado 2023