APTIC: a social network to improve the quality of life of members of patients' associations

por Armayones, Manuel, Hernández-Encuentra, Eulàlia, Gómez-Zúñiga, Beni, Guillamon, Noemí, Ontiveros, Gerardo, Bosque, Ana, Nafría, Begonya
Publicado 2010

How can we deliver on the promise of precision medicine in oncology and beyond? A practical roadmap for action

por Baird, Anne‐Marie, Westphalen, C. Benedikt, Blum, Sandra, Nafria, Begonya, Knott, Tanya, Sargeant, Ify, Harnik, Helena, Brooke, Nicholas, Wicki, Nicole, Wong‐Rieger, Durhane
Publicado 2023

European research networks to facilitate drug research in children

por Turner, Mark A., Cheng, Katharine, de Wildt, Saskia, Hildebrand, Heidrun, Attar, Sabah, Rossi, Paolo, Bonifazi, Donato, Ceci, Adriana, Claverol, Joana, Nafria, Begonya, Giaquinto, Carlo
Publicado 2020

Co-creation of patient engagement quality guidance for medicines development: an international multistakeholder initiative

por Deane, Katherine, Delbecque, Laure, Gorbenko, Oleksandr, Hamoir, Anne Marie, Hoos, Anton, Nafria, Begonya, Pakarinen, Chi, Sargeant, Ify, Richards, Dawn P, Skovlund, Soren Eik, Brooke, Nicholas
Publicado 2019

Children’s Preferences for Oral Dosage Forms and Their Involvement in Formulation Research via EPTRI (European Paediatric Translational Research Infrastructure)

por Alessandrini, Elisa, Brako, Francis, Scarpa, Mariagiovanna, Lupo, Mariangela, Bonifazi, Donato, Pignataro, Valeria, Cavallo, Maria, Cullufe, Ornela, Enache, Cristina, Nafria, Begonya, Claverol, Joana, De Taeye, Leen, Vermeulen, Eric, Preston, Jennifer, Tuleu, Catherine
Publicado 2021

Optimizing expert and patient input in pediatric trial design: Lessons learned and recommendations from a collaboration between conect4children and European Patient‐CEntric ClinicA...

por Dhaenens, Britt A. E., Mahler, Fenna, Batchelor, Hannah, Dicks, Pamela, Gaillard, Segolene, Nafria, Begonya, Kopp‐Schneider, Annette, Ribeiro, Maria Alexandra, Schwab, Matthias, Sparber‐Sauer, Monika, Leubner, Jonas, de Wildt, Saskia N., Oostenbrink, Rianne
Publicado 2023

“People play it down and tell me it can’t kill people, but I know people are dying each day”. Children’s health literacy relating to a global pandemic (COVID-19); an international...

por Bray, Lucy, Carter, Bernie, Blake, Lucy, Saron, Holly, Kirton, Jennifer A., Robichaud, Fanny, Avila, Marla, Ford, Karen, Nafria, Begonya, Forsner, Maria, Nilsson, Stefan, Chelkowski, Andrea, Middleton, Andrea, Rullander, Anna-Clara, Mattsson, Janet, Protheroe, Joanne
Publicado 2021

The conect4children (c4c) Consortium: Potential for Improving European Clinical Research into Medicines for Children

por Turner, Mark A., Hildebrand, Heidrun, Fernandes, Ricardo M., de Wildt, Saskia N., Mahler, Fenna, Hankard, Régis, Leary, Rebecca, Bonifazi, Fedele, Nobels, Patrick, Cheng, Katharine, Attar, Sabah, Rossi, Paolo, Rocchi, Francesca, Claverol, Joana, Nafria, Begonya, Giaquinto, Carlo
Publicado 2021

Understanding multi‐stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed‐methods study...

por Faulkner, Stuart D, Sayuri Ii, Suzanne, Pakarinen, Chi, Somers, Fabian, Jose Vicente Edo, Maria, Prieto Remon, Lucia, Diaz Ponce, Ana, Gove, Dianne, Ferrer, Elisa, Nafria, Begonya, Bertelsen, Neil, Boudes, Mathieu, Brooke, Nicholas, Moutet, Alexandra, Fahy, Nick
Publicado 2021

How Did the COVID-19 Lockdown Affect Children and Adolescent's Well-Being: Spanish Parents, Children, and Adolescents Respond

por Ajanovic, Sara, Garrido-Aguirre, Jon, Baro, Bàrbara, Balanza, Núria, Varo, Rosauro, Millat-Martínez, Pere, Arias, Sara, Fonollosa, Jordi, Perera-Lluna, Alexandre, Jordan, Iolanda, Muñoz-Almagro, Carmen, Bonet-Carne, Elisenda, Crosas-Soler, Aina, Via, Esther, Nafria, Begonya, García-García, Juan José, Bassat, Quique
Publicado 2021

Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder app...

por Bray, Lucy, Carter, Bernie, Kiernan, Joann, Horowicz, Ed, Dixon, Katie, Ridley, James, Robinson, Carol, Simmons, Anna, Craske, Jennie, Sinha, Stephanie, Morton, Liza, Nafria, Begonya, Forsner, Maria, Rullander, Anna-Clara, Nilsson, Stefan, Darcy, Laura, Karlsson, Katarina, Hubbuck, Cath, Brenner, Maria, Spencer-Little, Sian, Evans, Kath, Rowland, Andrew, Hilliard, Carol, Preston, Jennifer, Leroy, Piet L., Roland, Damian, Booth, Lisa, Davies, Jean, Saron, Holly, Mansson, Marie Edwinson, Cox, Ann, Ford, Karen, Campbell, Steven, Blamires, Julie, Dickinson, Annette, Neufeld, Michael, Peck, Blake, de Avila, Marla, Feeg, Veronica, Mediani, Henny Suzana, Atout, Maha, Majamanda, Maureen D., North, Natasha, Chambers, Christine, Robichaud, Fanny
Publicado 2023