The PID Principles of Care: Where Are We Now? A Global Status Report Based on the PID Life Index

por Nordin, Julia, Solís, Leire, Prévot, Johan, Mahlaoui, Nizar, Chapel, Helen, Sánchez-Ramón, Silvia, Ali, Adli, Seymour, John W., Pergent, Martine
Publicado 2021

The PID Life Index: an interactive tool to measure the status of the PID healthcare environment in any given country

por Solís, Leire, Nordin, Julia, Prevot, Johan, Mahlaoui, Nizar, Sánchez-Ramón, Silvia, Ali, Adli, Cassignol, Elodie, Seymour, John W., Pergent, Martine
Publicado 2022

Current Transition Practice for Primary Immunodeficiencies and Autoinflammatory Diseases in Europe: a RITA-ERN Survey

por Israni, Muskan, Nicholson, Bethany, Mahlaoui, Nizar, Obici, Laura, Rossi-Semerano, Linda, Lachmann, Helen, Hayward, Georgia, Avramovič, Mojca Zajc, Guffroy, Aurelien, Dalm, Virgil, Rimmer, Rachel, Solis, Leire, Villar, Carlotta, Gennery, Andrew R., Skeffington, Stephanie, Nordin, Julia, Warnatz, Klaus, Korganow, Anne-Sophie, Antón, Jordi, Cattalini, Marco, Amin, Tania, Berg, Stephan, Soler-Palacin, Pere, Burns, Siobhan O., Campbell, Mari
Publicado 2022