Emerging roles and opportunities for rare disease patient advocacy groups

por Patterson, Amy M., O’Boyle, Megan, VanNoy, Grace E., Dies, Kira A.
Publicado 2023

Phelan‐McDermid syndrome data network: Integrating patient reported outcomes with clinical notes and curated genetic reports

por Kothari, Cartik, Wack, Maxime, Hassen‐Khodja, Claire, Finan, Sean, Savova, Guergana, O'Boyle, Megan, Bliss, Geraldine, Cornell, Andria, Horn, Elizabeth J., Davis, Rebecca, Jacobs, Jacquelyn, Kohane, Isaac, Avillach, Paul
Publicado 2017

Web-Based Mindfulness-Based Interventions for Well-being: Randomized Comparative Effectiveness Trial

por Sylvia, Louisa G, Lunn, Mitchell R, Obedin-Maliver, Juno, McBurney, Robert N, Nowell, W Benjamin, Nosheny, Rachel L, Mularski, Richard A, Long, Millie D, Merkel, Peter A, Pletcher, Mark J, Tovey, Roberta E, Scalchunes, Christopher, Sutphen, Rebecca, Martin, Ann S, Horn, Elizabeth J, O'Boyle, Megan, Pitch, Lisa, Seid, Michael, Redline, Susan, Greenebaum, Sophie, George, Nevita, French, Noah J, Faria, Caylin M, Puvanich, Nicha, Rabideau, Dustin J, Selvaggi, Caitlin A, Yu, Chu, Faraone, Stephen V, Venkatachalam, Shilpa, McCall, Debbe, Terry, Sharon F, Deckersbach, Thilo, Nierenberg, Andrew A
Publicado 2022