How to discuss gene therapy for haemophilia? A patient and physician perspective

por Miesbach, Wolfgang, O’Mahony, Brian, Key, Nigel S., Makris, Mike
Publicado 2019

Economic Cost of Functional Neurologic Disorders: A Systematic Review

por O'Mahony, Brian, Nielsen, Glenn, Baxendale, Sallie, Edwards, Mark J., Yogarajah, Mahinda
Publicado 2023

Issues in assessing products for the treatment of hemophilia – the intersection between efficacy, economics, and ethics

por Farrugia, Albert, Noone, Declan, Schlenkrich, Uwe, Schlenkrich, Steffen, O’Mahony, Brian, Cassar, Josephine
Publicado 2015

Achieving the unimaginable: Health equity in haemophilia

por Skinner, Mark W., Nugent, Diane, Wilton, Pam, O’Mahony, Brian, Dolan, Gerry, O’Hara, Jamie, Berntorp, Erik
Publicado 2019

Association of factor expression levels with annual bleeding rate in people with haemophilia B

por Burke, Tom, Shaikh, Anum, Ali, Talaha M., Li, Nanxin, Konkle, Barbara A., Noone, Declan, O'Mahony, Brian, Pipe, Steven, O'Hara, Jamie
Publicado 2022

A systematic review of physical activity in people with haemophilia and its relationship with bleeding phenotype and treatment regimen

por Kennedy, Megan, O’Gorman, Philip, Monaghan, Ann, Lavin, Michelle, O’Mahony, Brian, O’Connell, Niamh M., O’ Donnell, James S., Turecek, Peter L., Gormley, John
Publicado 2021

Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire

por Chai-Adisaksopha, Chatree, Skinner, Mark W, Curtis, Randall, Frick, Neil, Nichol, Michael B, Noone, Declan, O’Mahony, Brian, Page, David, Stonebraker, Jeffrey, Thabane, Lehana, Crowther, Mark, Iorio, Alfonso
Publicado 2018

Core data set on safety, efficacy, and durability of hemophilia gene therapy for a global registry: Communication from the SSC of the ISTH

por Konkle, Barbara, Pierce, Glen, Coffin, Donna, Naccache, Mayss, Clark, R. Cary, George, Lindsey, Iorio, Alfonso, O’Mahony, Brian, Pipe, Steven, Skinner, Mark, Watson, Crystal, Peyvandi, Flora, Mahlangu, Johnny
Publicado 2020

Evidence of a disability paradox in patient‐reported outcomes in haemophilia

por O’Hara, Jamie, Martin, Antony P., Nugent, Diane, Witkop, Michelle, Buckner, Tyler W., Skinner, Mark W., O’Mahony, Brian, Mulhern, Brendan, Morgan, George, Li, Nanxin, Sawyer, Eileen K.
Publicado 2021

Kreuth V initiative: European consensus proposals for treatment of hemophilia using standard products, extended half-life coagulation factor concentrates and non-replacement therap...

por Peyvandi, Flora, Berger, Karin, Seitz, Rainer, Hilger, Anneliese, Hecquet, Marie-Laure, Wierer, Michael, Buchheit, Karl-Heinz, O’Mahony, Brian, Bok, Amanda, Makris, Mike, Mansmann, Ulrich, Schramm, Wolfgang, Mannucci, Pier Mannuccio
Publicado 2020

Recombinant factor IX‐Fc fusion protein in severe hemophilia B: Patient‐reported outcomes and health‐related quality of life

por O’Donovan, Mairead, Quinn, Eimear, Johnston, Kate, Singleton, Evelyn, Benson, Julie, O'Mahony, Brian, Noone, Declan, Duggan, Cleona, Gilmore, Ruth, Ryan, Kevin, O'Donnell, James S., O’Connell, Niamh M., Mahlangu, Johnny
Publicado 2021

Pain and functional disability amongst adults with moderate and severe haemophilia from the Irish personalised approach to the treatment of haemophilia (iPATH) study

por Kennedy, Megan, O’ Mahony, Brian, Roche, Sheila, McGowan, Mark, Singleton, Evelyn, Ryan, Kevin, O’ Connell, Niamh M., Pipe, Steven W., Lavin, Michelle, O’ Donnell, James S., Turecek, Peter L., Gormley, John
Publicado 2022

Physical activity, physical fitness and cardiometabolic risk amongst adults with moderate and severe haemophilia

por Kennedy, Megan, Roche, Sheila, McGowan, Mark, Singleton, Evelyn, Elsheikh, Einas, O'Donovan, Mairead, Ryan, Kevin, O'Connell, Niamh M., O'Mahony, Brian, Lavin, Michelle, O'Donnell, James S., Turecek, Peter L., Gormley, John
Publicado 2022

Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment

por Witkop, Michelle, Morgan, George, O'Hara, Jamie, Recht, Michael, Buckner, Tyler W., Nugent, Diane, Curtis, Randall, O'Mahony, Brian, Skinner, Mark W., Mulhern, Brendan, Cawson, Matthew, Ali, Talaha M., Sawyer, Eileen K., Li, Nanxin
Publicado 2021

Vaccination against COVID‐19: Rationale, modalities and precautions for patients with haemophilia and other inherited bleeding disorders

por Kaczmarek, Radoslaw, El Ekiaby, Magdy, Hart, Daniel P., Hermans, Cedric, Makris, Mike, Noone, Declan, O’Mahony, Brian, Page, David, Peyvandi, Flora, Pipe, Steven W., Sannié, Thomas, Schlenkrich, Uwe, Skinner, Mark W., Srivastava, Alok, Bok, Amanda, Pierce, Glenn F.
Publicado 2021

Patient‐relevant health outcomes for hemophilia care: Development of an international standard outcomes set

por van Balen, Erna C., O'Mahony, Brian, Cnossen, Marjon H., Dolan, Gerard, Blanchette, Victor S., Fischer, Kathelijn, Gue, Deborah, O'Hara, Jamie, Iorio, Alfonso, Jackson, Shannon, Konkle, Barbara A., Nugent, Diane J., Coffin, Donna, Skinner, Mark W., Smit, Cees, Srivastava, Alok, van Eenennaam, Fred, van der Bom, Johanna G., Gouw, Samantha C.
Publicado 2021