Assessing the impact of grief on quality of life, work productivity, and health outcomes for parents bereaved from SMA: A study protocol

por Riley, Abigail G., Mulé, Christina M., Lerner, Debra, Belter, Lisa, O’Toole, Colleen McCarthy, Kowal, Stacey, Fox, David, Shapouri, Sheila, Vesel, Tamara, Lavelle, Tara A.
Publicado 2023

The Cure SMA Membership Surveys: Highlights of Key Demographic and Clinical Characteristics of Individuals with Spinal Muscular Atrophy

por Belter, Lisa, Jarecki, Jill, Reyna, Sandra P., Cruz, Rosangel, Jones, Cynthia C., Schroth, Mary, O’Toole, Colleen McCarthy, O’Brien, Shannon, Hall, Susan A., Johnson, Nicole B., Paradis, Angela D.
Publicado 2021