‘This battle, between your gut feeling and your mind. Try to find the right balance’: Parental experiences of children with spinal muscular atrophy during COVID‐19 pandemic

por Oude Lansink, Irene L. B., van Stam, P. C. Carolien, Schafrat, Eline C. W. M., Mocking, Manouk, Prins, S. Dido, Beelen, Anita, Cuppen, Inge, van der Pol, W. Ludo, Gorter, Jan Willem, Ketelaar, Marjolijn
Publicado 2022

Population-based assessment of nusinersen efficacy in children with spinal muscular atrophy: a 3-year follow-up study

por Scheijmans, Féline E V, Cuppen, Inge, van Eijk, Ruben P A, Wijngaarde, Camiel A, Schoenmakers, Marja A G C, van der Woude, Danny R, Bartels, Bart, Veldhoen, Esther S, Oude Lansink, Irene L B, Groen, Ewout J N, Asselman, Fay-Lynn, Wadman, Renske I, van der Pol, W Ludo
Publicado 2022