The Role of Associations in Reducing the Emotional and Financial Impact on Parents Caring for Children with Duchenne Muscular Dystrophy: A Cross-Cultural Study

por Rodríguez, Alicia Aurora, Amayra, Imanol, López-Paz, Juan Francisco, Martínez, Oscar, García, Maitane, Salgueiro, Mónika, Al-Rashaida, Mohammad, Luna, Paula María, Pérez-Nuñez, Paula, Passi, Nicole, García, Irune, Ortega, Javiera
Publicado 2022

Coping with Wolf-Hirschhorn syndrome: quality of life and psychosocial features of family carers

por Berrocoso, Sarah, Amayra, Imanol, Lázaro, Esther, Martínez, Oscar, López-Paz, Juan Francisco, García, Maitane, Pérez, Manuel, Al-Rashaida, Mohammad, Rodríguez, Alicia Aurora, Luna, Paula Maria, Pérez-Núñez, Paula, Blanco, Raquel, Nevado, Julián
Publicado 2020

Diseases Costs and Impact of the Caring Role on Informal Carers of Children with Neuromuscular Disease

por Rodríguez, Alicia Aurora, Martínez, Óscar, Amayra, Imanol, López-Paz, Juan Francisco, Al-Rashaida, Mohammad, Lázaro, Esther, Caballero, Patricia, Pérez, Manuel, Berrocoso, Sarah, García, Maitane, Luna, Paula María, Pérez-Núñez, Paula, Passi, Nicole
Publicado 2021

Using a Virtual Serious Game (Deusto-e-motion1.0) to Assess the Theory of Mind in Primary School Children: Observational Descriptive Study

por Lázaro, Esther, Amayra, Imanol, López-Paz, Juan Francisco, Martínez, Oscar, Pérez Alvarez, Manuel, Berrocoso, Sarah, Al-Rashaida, Mohammad, García, Maitane, Luna, Paula, Pérez-Núñez, Paula, Rodriguez, Alicia Aurora, Fernández, Paula, Parada Fernández, Pamela, Oliva-Macías, Mireia
Publicado 2020

Effects of Teleassistance on the Quality of Life of People With Rare Neuromuscular Diseases According to Their Degree of Disability

por Martínez, Oscar, Amayra, Imanol, López-Paz, Juan Francisco, Lázaro, Esther, Caballero, Patricia, García, Irune, Rodríguez, Alicia Aurora, García, Maitane, Luna, Paula María, Pérez-Núñez, Paula, Barrera, Jaume, Passi, Nicole, Berrocoso, Sarah, Pérez, Manuel, Al-Rashaida, Mohammad
Publicado 2021