Quality-Adjusted Life Years in Erythropoietic Protoporphyria and Other Rare Diseases: A Patient-Initiated EQ-5D Feasibility Study

por Barman-Aksözen, Jasmin, Minder, Anna-Elisabeth, Granata, Francesca, Pettersson, Mårten, Dechant, Cornelia, Aksözen, Mehmet Hakan, Falchetto, Rocco
Publicado 2023