Understanding the Patient Experience in NUT Carcinoma: Qualitative Interviews with Patients and Caregivers to Develop a Conceptual Framework

por Pompilus, Farrah, Ciesluk, Anna, Marquis, Patrick, Griebsch, Ingolf, Voorhaar, Maarten
Publicado 2021

Patient-reported preferences for oral versus intravenous administration for the treatment of cancer: a review of the literature

por Eek, Daniel, Krohe, Meaghan, Mazar, Iyar, Horsfield, Alison, Pompilus, Farrah, Friebe, Rachel, Shields, Alan L
Publicado 2016

Development and psychometric evaluation of the assessment of self-injection questionnaire: an adaptation of the self-injection assessment questionnaire

por Pompilus, Farrah, Ciesluk, Anna, Strzok, Sara, Ciaravino, Valerie, Harris, Kristina, Szegvari, Boglarka, Mountian, Irina, Cleanthous, Sophie, Meunier, Juliette
Publicado 2020

Measuring patient-reported physical functioning and fatigue in myelodysplastic syndromes using a modular approach based on EORTC QLQ-C30

por Regnault, Antoine, Pompilus, Farrah, Ciesluk, Anna, Mazerolle, Flora, Bejar, Rafael, Fram, Robert J., Faller, Douglas V., Marquis, Patrick, Bell, Jill A.
Publicado 2021

Development of a Symptom-Based Patient-Reported Outcome Instrument for Functional Dyspepsia: A Preliminary Conceptual Model and an Evaluation of the Adequacy of Existing Instrument...

por Taylor, Fiona, Reasner, David S., Carson, Robyn T., Deal, Linda S., Foley, Catherine, Iovin, Ramon, Lundy, J. Jason, Pompilus, Farrah, Shields, Alan L., Silberg, Debra G.
Publicado 2016

A pragmatic patient-reported outcome strategy for rare disease clinical trials: application of the EORTC item library to myelodysplastic syndromes, chronic myelomonocytic leukemia,...

por Bell, Jill A., Galaznik, Aaron, Pompilus, Farrah, Strzok, Sara, Bejar, Rafael, Scipione, Fatima, Fram, Robert J., Faller, Douglas V., Cano, Stefan, Marquis, Patrick
Publicado 2019

Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations

por Simon, Amy, Pompilus, Farrah, Querbes, William, Wei, Alex, Strzok, Sara, Penz, Craig, Howe, Desiree Lyon, Hungate, Jessica R., Kim, Jae B., Agarwal, Sonalee, Marquis, Patrick
Publicado 2018

Addressing the targeting range of the ABILHAND-56 in relapsing–remitting multiple sclerosis: A mixed methods psychometric study

por Cleanthous, Sophie, Strzok, Sara, Pompilus, Farrah, Cano, Stefan, Marquis, Patrick, Cohan, Stanley, Goldman, Myla D, Kresa-Reahl, Kiren, Petrillo, Jennifer, Castrillo-Viguera, Carmen, Cadavid, Diego, Chen, Shih-Yin
Publicado 2018

Development of a gait module to complement the 12-item Multiple Sclerosis Walking Scale: a mixed methods study

por Strzok, Sara, Cleanthous, Sophie, Pompilus, Farrah, Cano, Stefan J, Marquis, Patrick, Cohan, Stanley, Goldman, Myla D, Kresa-Reahl, Kiren, Petrillo, Jennifer, Castrillo-Viguera, Carmen, Cadavid, Diego, Chen, Shih-Yin
Publicado 2018

Development of a symptom assessment in patients with myelofibrosis: qualitative study findings

por Mesa, Ruben A., Su, Yun, Woolfson, Adrien, Prchal, Josef T., Turnbull, Kathleen, Jabbour, Elias, Scherber, Robyn, Shields, Alan L., Krohe, Meaghan, Ojo, Funke, Pompilus, Farrah, Cappelleri, Joseph C., Harrison, Claire
Publicado 2019