Psychometric study of the SF-36v2 in hereditary angioedema due to C1 inhibitor deficiency (C1-INH-HAE)

por Palao-Ocharan, Paola, Prior, Nieves, Pérez-Fernández, Elia, Caminoa, Magdalena, Caballero, Teresa
Publicado 2022

Hereditary angioedema: health-related quality of life in Canadian patients as measured by the SF-36

por Jindal, Nina Lakhani, Harniman, Elaine, Prior, Nieves, Perez-Fernandez, Elia, Caballero, Teresa, Betschel, Stephen
Publicado 2017

Development of a disease-specific quality of life questionnaire for adult patients with hereditary angioedema due to C1 inhibitor deficiency (HAE-QoL): Spanish multi-centre researc...

por Prior, Nieves, Remor, Eduardo, Gómez-Traseira, Carmen, López-Serrano, Concepción, Cabañas, Rosario, Contreras, Javier, Campos, Ángel, Cardona, Victoria, Cimbollek, Stefan, González-Quevedo, Teresa, Guilarte, Mar, de Rojas, Dolores Hernández Fernández, Marcos, Carmen, Rubio, María, Tejedor-Alonso, Miguel Ángel, Caballero, Teresa
Publicado 2012

The international WAO/EAACI guideline for the management of hereditary angioedema – The 2021 revision and update

por Maurer, Marcus, Magerl, Markus, Betschel, Stephen, Aberer, Werner, Ansotegui, Ignacio J., Aygören-Pürsün, Emel, Banerji, Aleena, Bara, Noémi-Anna, Boccon-Gibod, Isabelle, Bork, Konrad, Bouillet, Laurence, Boysen, Henrik Balle, Brodszki, Nicholas, Busse, Paula J., Bygum, Anette, Caballero, Teresa, Cancian, Mauro, Castaldo, Anthony J., Cohn, Danny M., Csuka, Dorottya, Farkas, Henriette, Gompels, Mark, Gower, Richard, Grumach, Anete S., Guidos-Fogelbach, Guillermo, Hide, Michihiro, Kang, Hye-Ryun, Kaplan, Allen P., Katelaris, Constance H., Kiani-Alikhan, Sorena, Lei, Wei-Te, Lockey, Richard F., Longhurst, Hilary, Lumry, William, MacGinnitie, Andrew, Malbran, Alejandro, Martinez Saguer, Inmaculada, Matta Campos, Juan José, Nast, Alexander, Nguyen, Dinh, Nieto-Martinez, Sandra A., Pawankar, Ruby, Peter, Jonathan, Porebski, Grzegorz, Prior, Nieves, Reshef, Avner, Riedl, Marc, Ritchie, Bruce, Sheikh, Farrukh Rafique, Smith, William B., Spaeth, Peter J., Stobiecki, Marcin, Toubi, Elias, Varga, Lilian Agnes, Weller, Karsten, Zanichelli, Andrea, Zhi, Yuxiang, Zuraw, Bruce, Craig, Timothy
Publicado 2022

International consensus on the diagnosis and management of pediatric patients with hereditary angioedema with C1 inhibitor deficiency

por Farkas, H., Martinez‐Saguer, I., Bork, K., Bowen, T., Craig, T., Frank, M., Germenis, A. E., Grumach, A. S., Luczay, A., Varga, L., Zanichelli, A., Aberer, Werner, Andrejevic, Sladjana, Aygoeren‐Pürsün, Emel, Banerji, Alena, Bara, Noemi‐Anna, Bas, Murat, Bernstein, Jonathan, Betschel, Stephen, Björkander, Janne, Boccon‐Gibod, Isabelle, Bouillet, Laurence, Bova, Maria, Boysen, Henrik Halle, Branco‐Ferreira, Manuel, Bygum, Anette, Caballero, Teresa, Cancian, Mauro, Castaldo, Anthony, Christiansen, Sandra, Cicardi, Marco, Drouet, Christian, Fabiani, Jose, Gompels, Mark, Gonzalez‐Quevedo, Maria Teresa, Gooi, Jimmy, Gower, Richard, Gökmen, Nihal Mete, Grivcheva‐Panovska, Vesna, Guilarte, Mar, Gülbahar, Okan, Hack, Erik, Hakl, Roman, Harmat, György, Jeseňák, Miloš, Jolles, Stephen, Kaplan, Allen, Katelaris, Connie, Kosnik, Mitja, Kőhalmi, Kinga Viktória, Leibovich, Iris, Levi, Marcel, Li, Henry, Longhurst, Hilary J., Lumry, William, Magerl, Markus, Malbran, Alejandro, Martin, Ludovic, Maurer, Marcus, Mihály, Enikő, Moldovan, Dumitru, Murdjeva, Mariana, Nagy, Imola Beatrix, Nielsen, Erik W., Nieto, Sandra, Nordenfelt, Patrik, Obtulowitzc, Kristine, Pedrosa, Maria, Porębski, Grzegorz, Prior, Nieves, Reshef, Avner, Riedl, Marc A., Rosenkranz, Bernd, Schmid‐Grendelmeier, Peter, Péter, Spath, Speletas, Matthaios, Staevska, Maria, Stobiecki, Marcin, Triggiani, Massimo, Veszeli, Nóra, Wuillemin, Walter, Xiang, Zhi Yu, Yamamoto, Beverley, Zuraw, Bruce
Publicado 2016

Abstracts from the 10th C1-inhibitor deficiency workshop

por Schmaier, Alvin H., Cicardi, Marco, Reshef, Avner, Moldovan, Dumitru, Mócsai, Attila, López-Trascasa, Margarita, Lera, Alberto López, Brown, Nancy J., Germenis, Anastasios E., Filippelli-Silva, Rafael, Duarte, Diego A., Martin, Renan P., Veronez, Camila L., Bouvier, Michel, Bader, Michael, Costa-Neto, Claudio M., Pesquero, João Bosco, Charest-Morin, Xavier, Marceau, François, Rivard, Georges-É., Bonnefoy, Arnaud, Wagner, Éric, Debreczeni, Márta L., Németh, Zsuzsanna, Kajdácsi, Erika, Schwaner, Endre, Cervenak, László, Oroszlán, Gábor, Szilágyi, András, Dani, Ráhel, Závodszky, Péter, Gál, Péter, Dobó, József, Hébert, Jacques, Vincent, Matthieu, Boursiquot, Jean-Nicolas, Chapdeleine, Hugo, Desjardins, Marylin, Laramée, Benoit, Gagnon, Rémi, Payette, Nancy, Lepeshkina, Oleksandra, Charignon, Delphine, Ghannam, Arije, Ponard, Denise, Drouet, Christian, Joseph, Kusumam, Tholanikunnel, Baby G., Sexton, Daniel J., Kaplan, Allen P., Loffredo, Stefania, Bova, Maria, Ferrara, Anne Lise, Petraroli, Angelica, Suffritti, Chiara, Veszeli, Nóra, Zanichelli, Andrea, Farkas, Henriette, Marone, Gianni, Luyasu, Samuel, Favier, Bertrand, Martin, Ludovic, Kőhalmi, Kinga Viktória, Temesszentandrási, György, Várnai, Katalin, Varga, Lilian, Zuraw, Bruce L., Feussner, Annette, Tortorici, Michael A., Pawaskar, Dipti, Li, Huamin Henry, Anderson, John, Bernstein, Jonathan A., Zhang, Ying, Pragst, Ingo, Aygören-Pürsün, Emel, Jacobson, Kraig, Christensen, Jim, Van Leerberghe, Arthur, Wang, Yi, Schranz, Jennifer, Martinez-Saguer, Inmaculada, Soteres, Daniel, Steiner, Urs, Panovska, Vesna Grivcheva, Rae, William, Aberer, Werner, Huissoon, Aarnoud, Bygum, Anette, Magerl, Markus, Graff, Jochen, Longhurst, Hilary, Lleonart, Ramón, Fang, Lei, Cornpropst, Melanie, Clemons, Desiree, Mathis, Amanda, Collis, Phil, Dobo, Sylvia, Sheridan, William P., Maurer, Marcus, Riedl, Marc A., Craig, Timothy, Banerji, Aleena, Shennak, Mustafa, Yang, William, Baptista, Jovanna, Busse, Paula, Kalfus, Ira, McDonald, Andrew, Qian, Shawn, Roberts, Anthony, Panousis, Con, Green, Tim, Gille, Andreas, Zamanakou, Maria, Loules, Gedeon, Csuka, Dorottya, Psarros, Fotis, Parsopoulou, Faidra, Speletas, Matthaios, Firinu, Davide, De Pasquale, Tiziana Maria Angela, Zoli, Alessandra, Radice, Anna, Pizzimenti, Stefano, Manoussakis, Emmanouil, Konstantinou, George N., Bafunno, Valeria, Montinaro, Vincenzo, Cancian, Mauro, Margaglione, Maurizio, Bork, Konrad, Wulff, Karin, Witzke, Guenther, Hardt, Jochen, Bouillet, Laurence, Caballero, Teresa, Grumach, Anete S., Pommie, Christelle, Andresen, Irmgard, Ettingshausen, Carmen Escuriola, Gutowski, Zeynep, Andritschke, Karin, Linde, Richard, Andrási, Noémi, Szilágyi, Tamás, Leibovich-Nassi, Iris, Symons, Christine, Dempster, John, Boccon-Gibod, Isabelle, Pagnier, Anne, Lehmann, Audrey, Kreiberg, Kristian B., Nieto, Sandra A., Martins, Raquel, Martins, Renata, Menendez, Alejandra, Valle, Solange O. R., Olivares, Margarita, Hernandez-Landeros, Maria E., Nievas, Elma, Fili, Natalia, Barrera, Olga M., Bailleau, René, Gallardo-Olivos, Ana Maria, Grau, Masumi, Rodriguez-Galindo, Julian, Carabantes, Marlon J. O., Zapata-Venegas, Edison, Alfonso, Mario Martinez, Rosario-Grauert, Maria, Ratti, Manuel, Vaszquez, Daniel, Josviack, Dario, Landivar-Salinas, Luis Fernando, Calderón-Llosa, Oscar M. E., Campilay-Sarmiento, Rolando, Raby, Pablo, Fabiani, Jose, Lumry, William R., Feuersenger, Henrike, Watson, Douglas J., Machnig, Thomas, Lamacchia, Donatella, Hernanz, Adriana, Alvez, Ana, Lluncor, Mariana, Pedrosa, Maria, Cabañas, Rosario, Prior, Nieves, Nordenfelt, Patrik, Nilsson, Mats, Lindfors, Anders, Wahlgren, Carl-Fredrik, Björkander, Janne, Hakl, Roman, Kuklínek, Pavel, Krčmová, Irena, Hanzlíková, Jana, Vachová, Martina, Zachová, Radana, Sobotková, Marta, Strenková, Jana, Litzman, Jiří, Palasopoulou, Maria, Tsinti, Gerasimina, Gianni, Panagiota, Kompoti, Maria, Garrido, Sofia, Dyga, Wojciech, Bogdali, Anna, Obtułowicz, Aleksander, Tomasz, Mikolajczyk, Czarnobilska, Ewa, Obtulowicz, Krystyna, Książek, Teofila, Koncz, Anna, Gulyás, Dominik, Staevska, Maria, Jesenak, Milos, Hrubiskova, Katarina, Bellizzi, L., Relan, A., Wu, Maddalena A., Castelli, Antonio, Colombo, Riccardo, Podda, Gianmarco, Del Medico, Marta, Catena, Emanuele, Casella, Francesco, Perego, Francesca, Afifi, Nada Afifi, Tobaldini, Eleonora, Montano, Nicola, Sánchez-Jareño, Marta, Stobiecki, Marcin, Obtułowicz, Krystyna, Guryanova, Irina, Polyakova, Ekaterina, Lebedz, Viktar, Salivonchik, Andrej, Aleshkevich, Svetlana, Belevtsev, Mikhail, Nordmann-Kleiner, Melanie, Trainotti, Susanne, Hahn, Janina, Greve, Jens, Zabrodska, Liudmyla, Alonso, Maria L. Oliva, Tórtora, Rosangela P., França, Alfeu T., Ribeiro, Marcia G., Fu, Lisa, Kanani, Amin, Lacuesta, Gina, Waserman, Susan, Betschel, Stephen, Espinosa, Melissa I., Contreras, Francisco A., Hrubisko, Martin, Vavrova, Ludmila, Banovcin, Peter, Ayazi, Maryam, Fazlollahi, Mohammad Reza, Saghafi, Shiva, Mohammadian, Sajedeh, Deshiry, Susan Nabilou, Bidad, Kiana, Shoormasti, Raheleh Shokouhi, Mohammadzadeh, Iraj, Bemanian, Mohammad Hassan, Mahdaviani, Seyed Alireza, Pourpak, Zahra, Valerieva, Anna, Vasileva, Mariela, Velikova, Tsvetelina, Petkova, Elena, Dimitrov, Vasil, Di Maulo, Ruggero, Somech, Raz, Golander, Hava, Sifuentes, Erika J., Mansard, Catherine, Gompel, Anne, Floccard, Bernard, Blanchard-Delaunay, Claire, Launay, David, Fain, Olivier, Sobel, Alain, Gayet, Stéphane, Amarger, Stéphanie, Armengol, Guillaume, Ollivier, Yann, Zélinsky-Gurung, Ariane, Jeandel, Pierre-Yves, Kanny, Gisèle, Coppéré, Brigitte, Dubrel, Marie, Pelletier, Fabien, Du Thanh, Aurélie, Trouiller, Sébastien, Laurent, Jérôme, De Moreuil, Claire, Pajot, Christine Audouin, Belot, Alexandre, Rodríguez, Ana, Roa, Dasha, Prieto, Alicia, Baeza, Maria Luisa, Krusheva, Borislava, Almeida, Stephanie K. A., Constantino-Silva, Rosemeire N., Melo, Nyla, Simoes, Joanna Araujo, Palma, Sandra Mitie U., da Silva, Jane, de Azevedo, Bruna F., Mansour, Eli, González-Quevedo, Teresa, Marcos, Carmen, Lobera, Teófilo, de San Pedro, Blanca Sáenz, Avilla, Ernie, Badiou, Jacquie, Binkley, Karen, Borici-Mazi, Rozita, Howlett, Linda, Keith, Paul K., Rowe, Anne, Waite, Peter, Billebeau, Aurore, Boccon-Gibbod, Isabelle, Lis, Kristina, Laitman, Yael, Friedman, Eitan, Gokmen, N. M., Gulbahar, O., Onay, H., Koc, Z. P., Sin, A. Z.
Publicado 2017