Outcomes and benefits of pediatric cochlear implantation in children with additional disabilities: a review and report of family influences on outcomes

por Cejas, Ivette, Hoffman, Michael F, Quittner, Alexandra L
Publicado 2015

Assessing disease disclosure in adults with cystic fibrosis: the Adult Data for Understanding Lifestyle and Transitions (ADULT) survey Disclosure of disease in adults with cystic f...

por Modi, Avani C, Quittner, Alexandra L, Boyle, Michael P
Publicado 2010

Anxiety and depression in Dutch patients with primary ciliary dyskinesia and their caregivers: associations with health-related quality of life

por Verkleij, Marieke, Appelman, Iris, Altenburg, Josje, Twisk, Jos, Quittner, Alexandra L., Haarman, Eric
Publicado 2021

Pilot Evaluation of a Management Toolkit for Airway Clearance Therapy in Bronchiectasis (IMPACT BE)

por Solomon, George M., Barker, Alan F., McSpiritt, Elizabeth, Marikovics, Sonja, Quittner, Alexandra L.
Publicado 2023

Symbolic Play and Novel Noun Learning in Deaf and Hearing Children: Longitudinal Effects of Access to Sound on Early Precursors of Language

por Quittner, Alexandra L., Cejas, Ivette, Wang, Nae-Yuh, Niparko, John K., Barker, David H.
Publicado 2016

Patient engagement in the development of CF-CBT: A cystic fibrosis-specific cognitive-behavioral intervention for adults

por Friedman, Deborah, Kaskas, Maysa M., Quittner, Alexandra L., Smith, Beth A., Georgiopoulos, Anna M.
Publicado 2022

1899. Core Outcome Domains for Mycobacterium avium complex Pulmonary Disease Clinical Trials: Mycobacterium avium complex Core Outcomes Research (MACCOR)

por Varley, Cara D, Stadnik, Ryan, Bingham, Clifton, Quittner, Alexandra L, Lewinsohn, David, Winthrop, Kevin L
Publicado 2023

Adherence with tobramycin inhaled solution and health care utilization

por Briesacher, Becky A, Quittner, Alexandra L, Saiman, Lisa, Sacco, Patricia, Fouayzi, Hassan, Quittell, Lynne M
Publicado 2011

Electronic applications for the CFQ-R scoring

por Ronit, Andreas, Gelpi, Marco, Argentiero, Jonathan, Mathiesen, Inger, Nielsen, Susanne D., Pressler, Tanja, Quittner, Alexandra L.
Publicado 2017

Validation of a health-related quality of life instrument for primary ciliary dyskinesia (QOL-PCD)

por Behan, Laura, Leigh, Margaret W, Dell, Sharon D, Dunn Galvin, Audrey, Quittner, Alexandra L, Lucas, Jane S
Publicado 2017

Impact of COVID-19 on mental health: Effects on screening, care delivery, and people with cystic fibrosis()

por Smith, Beth A., Georgiopoulos, Anna M., Mueller, Amy, Abbott, Janice, Lomas, Paula, Aliaj, Enid, Quittner, Alexandra L.
Publicado 2021

Children with disorders of sex development: A qualitative study of early parental experience

por Crissman, Halley P, Warner, Lauren, Gardner, Melissa, Carr, Meagan, Schast, Aileen, Quittner, Alexandra L, Kogan, Barry, Sandberg, David E
Publicado 2011

Language development after cochlear implantation: an epigenetic model

por Markman, Timothy M., Quittner, Alexandra L., Eisenberg, Laurie S., Tobey, Emily A., Thal, Donna, Niparko, John K., Wang, Nae-Yuh
Publicado 2011

Treatment adherence and health outcomes in patients with bronchiectasis

por McCullough, Amanda R, Tunney, Michael M, Quittner, Alexandra L, Elborn, J Stuart, Bradley, Judy M, Hughes, Carmel M
Publicado 2014

Coach to cope: feasibility of a life coaching program for young adults with cystic fibrosis

por Knudsen, Karin Bæk, Pressler, Tacjana, Mortensen, Laust Hvas, Jarden, Mary, Boisen, Kirsten Arntz, Skov, Marianne, Quittner, Alexandra L, Katzenstein, Terese Lea
Publicado 2017

International Committee on Mental Health in Cystic Fibrosis: Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for screening and treating depress...

por Quittner, Alexandra L, Abbott, Janice, Georgiopoulos, Anna M, Goldbeck, Lutz, Smith, Beth, Hempstead, Sarah E, Marshall, Bruce, Sabadosa, Kathryn A, Elborn, Stuart
Publicado 2016

A quality-of-life measure for adults with primary ciliary dyskinesia: QOL–PCD

por Lucas, Jane S., Behan, Laura, Dunn Galvin, Audrey, Alpern, Adrianne, Morris, Anjana M., Carroll, Mary P., Knowles, Michael R., Leigh, Margaret W., Quittner, Alexandra L.
Publicado 2015

Study protocol, rationale and recruitment in a European multi-centre randomized controlled trial to determine the efficacy and safety of azithromycin maintenance therapy for 6 mont...

por Kobbernagel, Helene E., Buchvald, Frederik F., Haarman, Eric G., Casaulta, Carmen, Collins, Samuel A., Hogg, Claire, Kuehni, Claudia E., Lucas, Jane S., Omran, Heymut, Quittner, Alexandra L., Werner, Claudius, Nielsen, Kim G.
Publicado 2016

Prospective multicenter randomized patient recruitment and sample collection to enable future measurements of sputum biomarkers of inflammation in an observational study of cystic...

por Liou, Theodore G., Adler, Frederick R., Argel, Natalia, Asfour, Fadi, Brown, Perry S., Chatfield, Barbara A., Daines, Cori L., Durham, Dixie, Francis, Jessica A., Glover, Barbara, Heynekamp, Theresa, Hoidal, John R., Jensen, Judy L., Keogh, Ruth, Kopecky, Carol M., Lechtzin, Noah, Li, Yanping, Lysinger, Jerimiah, Molina, Osmara, Nakamura, Craig, Packer, Kristyn A., Poch, Katie R., Quittner, Alexandra L., Radford, Peggy, Redway, Abby J., Sagel, Scott D., Sprandel, Shawna, Taylor-Cousar, Jennifer L., Vroom, Jane B., Yoshikawa, Ryan, Clancy, John P., Elborn, J. Stuart, Olivier, Kenneth N., Cox, David R.
Publicado 2019

Repeated nebulisation of non-viral CFTR gene therapy in patients with cystic fibrosis: a randomised, double-blind, placebo-controlled, phase 2b trial

por Alton, Eric W F W, Armstrong, David K, Ashby, Deborah, Bayfield, Katie J, Bilton, Diana, Bloomfield, Emily V, Boyd, A Christopher, Brand, June, Buchan, Ruaridh, Calcedo, Roberto, Carvelli, Paula, Chan, Mario, Cheng, Seng H, Collie, D David S, Cunningham, Steve, Davidson, Heather E, Davies, Gwyneth, Davies, Jane C, Davies, Lee A, Dewar, Maria H, Doherty, Ann, Donovan, Jackie, Dwyer, Natalie S, Elgmati, Hala I, Featherstone, Rosanna F, Gavino, Jemyr, Gea-Sorli, Sabrina, Geddes, Duncan M, Gibson, James S R, Gill, Deborah R, Greening, Andrew P, Griesenbach, Uta, Hansell, David M, Harman, Katharine, Higgins, Tracy E, Hodges, Samantha L, Hyde, Stephen C, Hyndman, Laura, Innes, J Alastair, Jacob, Joseph, Jones, Nancy, Keogh, Brian F, Limberis, Maria P, Lloyd-Evans, Paul, Maclean, Alan W, Manvell, Michelle C, McCormick, Dominique, McGovern, Michael, McLachlan, Gerry, Meng, Cuixiang, Montero, M Angeles, Milligan, Hazel, Moyce, Laura J, Murray, Gordon D, Nicholson, Andrew G, Osadolor, Tina, Parra-Leiton, Javier, Porteous, David J, Pringle, Ian A, Punch, Emma K, Pytel, Kamila M, Quittner, Alexandra L, Rivellini, Gina, Saunders, Clare J, Scheule, Ronald K, Sheard, Sarah, Simmonds, Nicholas J, Smith, Keith, Smith, Stephen N, Soussi, Najwa, Soussi, Samia, Spearing, Emma J, Stevenson, Barbara J, Sumner-Jones, Stephanie G, Turkkila, Minna, Ureta, Rosa P, Waller, Michael D, Wasowicz, Marguerite Y, Wilson, James M, Wolstenholme-Hogg, Paul
Publicado 2015