A Mixed-Methods Feasibility Study of Integrated Pediatric Complex Care: Experiences of Parents With Care and the Value of Parent Engagement in Research

por Hlyva, Oksana, Rae, Charlene, Deibert, Shelby, Kamran, Rakhshan, Shaikh, Haniah, Thabane, Lehana, Rosenbaum, Peter, Klassen, Anne, Lim, Audrey
Publicado 2021

Development and Validation of a Patient-Reported Outcome Measure for Fingernail and Toenail Conditions: The NAIL-Q

por Klassen, Anne F, Rae, Charlene, O’Malley, Maureen, Breitkopf, Trisia, Algu, Leah, Mansouri, Jasmine, Brown, Claire R, Wang, Yi, Lipner, Shari R
Publicado 2023

Psychometric Validation of the CLEFT-Q Patient Reported Outcome Measure: A Prospective Study to Examine Cross-Sectional Construct Validity

por Miroshnychenko, Anna, Rae, Charlene, Riff, Karen Wong, Forrest, Christopher, Goodacre, Tim, Swan, Marc, Slator, Rona, Goldstein, Jesse, Thoma, Achilleas, Harman, Karen, Klassen, Anne
Publicado 2021

Screening for distress and needs: Findings from a multinational validation of the Adolescent and Young Adult Psycho‐Oncology Screening Tool with newly diagnosed patients

por Patterson, Pandora, D'Agostino, Norma M., McDonald, Fiona E. J., Church, Terry David, Costa, Daniel S. J., Rae, Charlene S., Siegel, Stuart E., Hu, James, Bibby, Helen, Stark, Dan P.
Publicado 2021

Patient‐reported outcomes in childhood head and neck rhabdomyosarcoma survivors and their relation to physician‐graded adverse events—A multicenter study using the FACE‐Q Craniofac...

por Morfouace, Michèle, Hol, Marinka L. F., Schoot, Reineke A., Slater, Olga, Indelicato, Daniel J., Kolb, Frédéric, Smeele, Ludwig E., Merks, Johannes H. M., Rae, Charlene, Maurice‐Stam, Heleen, Klassen, Anne F., Grootenhuis, Martha A.
Publicado 2022