Collaborative research protocol to define patient-reported experience measures of the cystic fibrosis care pathway in France: the ExPaParM study

por Pougheon Bertrand, D., Fanchini, A., Lombrail, P., Rault, G., Chansard, A., Le Breton, N., Frenod, C., Milon, F., Heymes-Royer, C., Segretain, D., Silber, M., Therouanne, S., Haesebaert, J., Llerena, C., Michel, P., Reynaud, Q.
Publicado 2022

A conceptual framework to develop a patient-reported experience questionnaire on the cystic fibrosis journey in France: the ExPaParM collaborative study

por Pougheon Bertrand, D., Fanchini, A., Lombrail, P., Rault, G., Chansard, A., Le Breton, N., Frenod, C., Milon, F., Royer, C. Heymes, Segretain, D., Silber, M., Therouanne, S., Haesebaert, J., Llerena, C., Michel, P., Reynaud, Q.
Publicado 2023