How to responsibly acknowledge research work in the era of big data and biobanks: ethical aspects of the Bioresource Research Impact Factor (BRIF)

por Howard, Heidi Carmen, Mascalzoni, Deborah, Mabile, Laurence, Houeland, Gry, Rial-Sebbag, Emmanuelle, Cambon-Thomsen, Anne
Publicado 2017

Consent for Biobanking: The Legal Frameworks of Countries in the BioSHaRE-EU Project

por Kaye, Jane, Briceño Moraia, Linda, Curren, Liam, Bell, Jessica, Mitchell, Colin, Soini, Sirpa, Hoppe, Nils, Øien, Morten, Rial-Sebbag, Emmanuelle
Publicado 2016

One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans

por Howard, Heidi C., van El, Carla G., Forzano, Francesca, Radojkovic, Dragica, Rial-Sebbag, Emmanuelle, de Wert, Guido, Borry, Pascal, Cornel, Martina C.
Publicado 2017

ESHG PPPC Comments on postmortem use of genetic data for research purposes

por Fellmann, Florence, Rial-Sebbag, Emmanuelle, Patch, Christine, Hentze, Sabine, Stefandottir, Vigdis, Mendes, Álvaro, van El, Carla G., Cornel, Martina C., Forzano, Francesca
Publicado 2019

Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?

por Budin-Ljøsne, Isabelle, Mascalzoni, Deborah, Soini, Sirpa, Machado, Helena, Kaye, Jane, Bentzen, Heidi Beate, Rial-Sebbag, Emmanuelle, D'Abramo, Flavio, Witt, Michał, Schamps, Geneviève, Katić, Višnja, Krajnovic, Dusanca, Harris, Jennifer R.
Publicado 2016

Human germline gene editing. Recommendations of ESHG and ESHRE(†)(‡)

por de Wert, Guido, Pennings, Guido, Clarke, Angus, Eichenlaub-Ritter, Ursula, van El, Carla G, Forzano, Francesca, Goddijn, Mariëtte, Heindryckx, Björn, Howard, Heidi C, Radojkovic, Dragica, Rial-Sebbag, Emmanuelle, Tarlatzis, Basil C, Cornel, Martina C
Publicado 2018

Responsible innovation in human germline gene editing. Background document to the recommendations of ESHG and ESHRE(†)(‡)

por de Wert, Guido, Heindryckx, Björn, Pennings, Guido, Clarke, Angus, Eichenlaub-Ritter, Ursula, van El, Carla G, Forzano, Francesca, Goddijn, Mariëtte, Howard, Heidi C, Radojkovic, Dragica, Rial-Sebbag, Emmanuelle, Dondorp, Wybo, Tarlatzis, Basil C, Cornel, Martina C
Publicado 2018

Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory

por Bernier, Alexander, Molnár-Gábor, Fruzsina, Knoppers, Bartha M., Borry, Pascal, Cesar, Priscilla M. D. G., Devriendt, Thijs, Goisauf, Melanie, Murtagh, Madeleine, Jiménez, Pilar Nicolás, Recuero, Mikel, Rial-Sebbag, Emmanuelle, Shabani, Mahsa, Wilson, Rebecca C., Zaccagnini, Davide, Maxwell, Lauren
Publicado 2023

Opportunistic genomic screening. Recommendations of the European Society of Human Genetics

por de Wert, Guido, Dondorp, Wybo, Clarke, Angus, Dequeker, Elisabeth M. C., Cordier, Christophe, Deans, Zandra, van El, Carla G., Fellmann, Florence, Hastings, Ros, Hentze, Sabine, Howard, Heidi, Macek, Milan, Mendes, Alvaro, Patch, Chris, Rial-Sebbag, Emmanuelle, Stefansdottir, Vigdis, Cornel, Martina C., Forzano, Francesca
Publicado 2020

Including all voices in international data-sharing governance

por Kaye, Jane, Terry, Sharon F., Juengst, Eric, Coy, Sarah, Harris, Jennifer R., Chalmers, Don, Dove, Edward S., Budin-Ljøsne, Isabelle, Adebamowo, Clement, Ogbe, Emilomo, Bezuidenhout, Louise, Morrison, Michael, Minion, Joel T., Murtagh, Madeleine J., Minari, Jusaku, Teare, Harriet, Isasi, Rosario, Kato, Kazuto, Rial-Sebbag, Emmanuelle, Marshall, Patricia, Koenig, Barbara, Cambon-Thomsen, Anne
Publicado 2018

Recontacting patients in clinical genetics services: recommendations of the European Society of Human Genetics

por Carrieri, Daniele, Howard, Heidi C., Benjamin, Caroline, Clarke, Angus J., Dheensa, Sandi, Doheny, Shane, Hawkins, Naomi, Halbersma-Konings, Tanya F., Jackson, Leigh, Kayserili, Hülya, Kelly, Susan E., Lucassen, Anneke M., Mendes, Álvaro, Rial-Sebbag, Emmanuelle, Stefánsdóttir, Vigdís, Turnpenny, Peter D., van El, Carla G., van Langen, Irene M., Cornel, Martina C., Forzano, Francesca
Publicado 2018

European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death

por Fellmann, Florence, van El, Carla G., Charron, Philippe, Michaud, Katarzyna, Howard, Heidi C., Boers, Sarah N., Clarke, Angus J., Duguet, Anne-Marie, Forzano, Francesca, Kauferstein, Silke, Kayserili, Hülya, Lucassen, Anneke, Mendes, Álvaro, Patch, Christine, Radojkovic, Dragica, Rial-Sebbag, Emmanuelle, Sheppard, Mary N., Tassé, Anne-Marie, Temel, Sehime G., Sajantila, Antti, Basso, Cristina, Wilde, Arthur A. M., Cornel, Martina C.
Publicado 2019

Generating evidence for precision medicine: considerations made by the Ubiquitous Pharmacogenomics Consortium when designing and operationalizing the PREPARE study

por van der Wouden, Cathelijne H., Böhringer, Stefan, Cecchin, Erika, Cheung, Ka-Chun, Dávila-Fajardo, Cristina Lucía, Deneer, Vera H.M., Dolžan, Vita, Ingelman-Sundberg, Magnus, Jönsson, Siv, Karlsson, Mats O., Kriek, Marjolein, Mitropoulou, Christina, Patrinos, George P., Pirmohamed, Munir, Rial-Sebbag, Emmanuelle, Samwald, Matthias, Schwab, Matthias, Steinberger, Daniela, Stingl, Julia, Sunder-Plassmann, Gere, Toffoli, Giuseppe, Turner, Richard M., van Rhenen, Mandy H., van Zwet, Erik, Swen, Jesse J., Guchelaar, Henk-Jan
Publicado 2020

Multicomponent intervention to prevent mobility disability in frail older adults: randomised controlled trial (SPRINTT project)

por Bernabei, Roberto, Landi, Francesco, Calvani, Riccardo, Cesari, Matteo, Del Signore, Susanna, Anker, Stefan D, Bejuit, Raphael, Bordes, Philippe, Cherubini, Antonio, Cruz-Jentoft, Alfonso J, Di Bari, Mauro, Friede, Tim, Gorostiaga Ayestarán, Carmen, Goyeau, Harmonie, Jónsson, Pálmi V, Kashiwa, Makoto, Lattanzio, Fabrizia, Maggio, Marcello, Mariotti, Luca, Miller, Ram R, Rodriguez-Mañas, Leocadio, Roller-Wirnsberger, Regina, Rýznarová, Ingrid, Scholpp, Joachim, Schols, Annemie M W J, Sieber, Cornel C, Sinclair, Alan J, Skalska, Anna, Strandberg, Timo, Tchalla, Achille, Topinková, Eva, Tosato, Matteo, Vellas, Bruno, von Haehling, Stephan, Pahor, Marco, Roubenoff, Ronenn, Marzetti, Emanuele, Dahy, Andeleeb, Nicolas, Laurent, Zia, Gianluca, Bertuzzi, Cinzia, De Giorgi, Sabina, Feletti, Luca, Loria, Alessandro, Mantovani, Davide, Marchioro, Elisa, Mocci, Francesco, Sacco, Alberto, Varesio, Maria Grazia, Billot, Maxime, Cardinaud, Noëlle, Castelli, Muriel, Charenton-Blavignac, Marion, Ciccolari-Micaldi, Cecilia, Dantoine, Thierry, Gayot, Caroline, Giroult, Nicolas, Larreur, Anael, Laubarie-Mouret, Cécilie, Marchesseau, Delphine, Mergans, Thomas, Nguyen, Thai Binh, Papon, Arnaud, Ribet, Johann, Saulnie, Isabelle, Abellan Van Kan, Gabor, Biville, Virginie, Brigitte, Lauréane, Cervera, Carole, Cluzan, Céline, Croizet, Muriel, Dardenne, Sophie, Dorard, Marie, Dupuy, Charlotte, Durand, Emilie, Faisant, Catherine, Guyonnet, Sophie, Mauroux, Rémi, Milhet, Agathe, Montel, Sylvie, Ousset, Pierre-Jean, Picauron, Cécile, Soriano, Gaelle, Teysseyre, Bernard, Harris, Sital, Ogborne, Allison, Ritchie, Sarah, Sinclair, Harriet, Tirrell, Lois, Sinclair, Caroline, Cesario, Alfredo, Cabin, Barbara, de Boer, Pim, Ignaszewski, Claire, Klingmann, Ingrid, Auerswald, Tina, Engel, Christof, Franke, Anna, Freiberger, Ellen, Freiheit, Ulrike, Gotthardt, Susann, Kampe, Karin, Kob, Robert, Kokott, Christine, Kraska, Carolin, Meyer, Christian, Reith, Veronika, Rempe, Hanna, Schoene, Daniel, Sieber, Gabrielle, Zielinski, Kerstin, Ebner, Nicole, Benecky, Michael, Alvarez-Bustos, Alejandro, Alonso Bouzon, Cristina, Contreras Escamez, Beatriz, Gonzales Turin, Jimmy, Laosa Zafra, Olga, Lopez Tatis, Myriel, Pedraza Sepulveda, Laura, Sanchez, Juan Luis, Sanchez Puelles, Carlos, Álvarez-Santos, Juan, Fernández-Jiménez, Belén, Mateos-del Nozal, Jesús, Montero-Errasquín, Beatriz, Ponce-Moreno, Beatriz, Roldán-Plaza, Cristina, Romera-de Vicente, Alfonso, Sánchez-Cadenas, Vicente, Sánchez-Castellano, Carmen, Sánchez-García, Elisabet, Vaquero-Pinto, María Nieves, Andrieu, Sandrine, Blasimme, Alessandro, Dray, Cedric, Rial-Sebbag, Emmanuelle, Valet, Philippe, Laigle, Laurence, Martinez-Melchor, Itziar, Surroca, Belen, Ambrosi, Stefania, Baldoni, Renato, Bernabei, Serena, Bonfigli, Anna Rita, Bustacchini, Silvia, Carrieri, Barbara, Costantini, Anna Rita, Cucchi, Michela, Dell’Aquila, Giuseppina, Espinosa, Emma, Izzo, Luciano, Fedecostante, Massimiliano, Mannoni, Michela, Mengarelli, Antonella, Modestino, Marino, Monterubbianesi, Emanuele, Piomboni, Stefano, Scrimieri, Antonia, Severini, Eddy, Trotta, Fabiana Mirella, Vece, Lorella, Venere, Susanna, Zengarini, Elisa, Chang, Milan, Eymundsdóttir, Hrafnhildur, Geirsdóttir, Ólöf Guðný, Gunnarsson, Steinn Baugur, Guðnadóttir, Steinunn, Ramel, Alfons, Shcherbak, Konstantín, Wirnsberger, Gerhard, Kao, Sheena, Barnouin, Romain, van Velsenm, Lex, Vollenbroek-Hutten, Miriam, Asbrand, Christian, Durand, Sandrine, Joly, Florence, Flechsenhar, Klaus, Le Lain, Régis, Mshihid, Jerome, Ndja, Aurèle, Drastichova, Ivana, Hasaliková, Eva, Hucko, Radim, Jakub, Seget, Janácová, Monika, Kilmková, Michaela, Parízková, Martina, Pavelková, Kristyna, Redrova, Michaela, Rusková, Petra, Basile, Michele, Biscotti, Damiano, Boni, Claudio, Brandi, Vincenzo, Broccatelli, Marianna, Celesti, Carilia, Cicchetti, Americo, Coelho-Junior, Hélio Jose, Collamati, Agnese, Coretti, Silvia, D’Angelo, Emanuela, D'Elia, Mariaelena, Di Brino, Eugenio, Landi, Giovanni, Martone, Anna Maria, Ortolani, Elena, Pafundi, Teodosio, Pantanelli, Cecilia, Picca, Anna, Ruggeri, Matteo, Rumi, Filippo, Salini, Sara, Savera, Giulia, Serafini, Elisabetta, Vetrano, Davide L, Vitale, Fabio, Adorni, Elisa, Lauretani, Fulvio, Longobucco, Yari, Pelà, Giovanna Maria, Tagliaferri, Sara, Rapp, Thomas, Arrghi, Yves, Ravesteinj, Bastian, Ronchetti, Jérôme, Roquebert, Quittterie, Sicsic, Jonathan, Sirven, Nicolas, Gosker, Harry, Schols, Jos M G A, Schuurman, Lisanne, Smeets, Nick, van de Bool, Coby, Weling, Claire, Hallikas, Katja, Herranen, Marjatta, Hyvönen, Laura, Ikonen, Kirsi, Jyväkorpi, Satu, Karppi-Sjöblom, Anne, Karvinen, Kaisa, Kindstedt, Tarja, Leirimaa, Saana, Öhman, Hanna, Pitkälä, Kaisu, Punkka, Anja, Saavalainen, Anna-Maria, Salo, Tuulia, Sohlberg, Katja, Tilvis, Reijo, Urtamo, Annele, Vanhanen, Hannu, Bautzká, Lucie, Gueye, Tereza, Juklíčková, Ilona, Mádlová, Pavla, Mejstříková, Helena, Michálková, Helena, Novotná, Eva Klára, Vágnerová, Tereza, Blaszczyk-Bebenek, Ewa, Cwynar, Marcin, Czesak, Joanna, Fatyga, Paulina, Fedyk-Lukasik, Malgorzata, Grodzicki, Tomasz, Jamrozik, Paulina, Janusz, Zbigniew, Klimek, Ewa, Komoniewska, Sylwia, Kret, Maria, Ozog, Maciej, Parnicka, Agnieszka, Petitjean, Katarzyna, Pietrzyk, Anna, Piotrowicz, Karolina, Skalska-Dulinska, Barbara, Starzyk, Damian, Szczerbinska, Katarzyna, Witkiewicz, Borys, Wlodarczyk, Anna, Zgud, Wieslawa
Publicado 2022