The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment

por Robertson, Eden G, Wakefield, Claire E, Cohn, Richard J, O'Brien, Tracey, Ziegler, David S, Fardell, Joanna E
Publicado 2018

Going Virtual: Adapting an Institutional Annual Bereavement Event During the COVID-19 Pandemic

por Zavadil, Jessica, Singh, Meghna, Robertson, Eden G., Clark, Lisa, Snaman, Jenn M., McNeil, Michael, Acerra, Anna, Baker, Justin N.
Publicado 2023

Parents’ understanding of genome and exome sequencing for pediatric health conditions: a systematic review

por Gereis, Jessica, Hetherington, Kate, Ha, Lauren, Robertson, Eden G., Ziegler, David S., Barlow-Stewart, Kristine, Tucker, Katherine M., Marron, Jonathan M., Wakefield, Claire E.
Publicado 2022

Communication of Early Integration of Palliative Care for Children With Cancer in Latin America: The Care as a Vessel Metaphor

por Garcia-Quintero, Ximena, Cleves, Daniela, Cuervo, Maria Isabel, McNeil, Michael, Salek, Marta, Robertson, Eden G., Gomez, Wendy, Baker, Justin N., Kaye, Erica C.
Publicado 2023

Parents’ experiences of postmortem tumor donation for high-grade gliomas: benefits and suggested improvements

por Robertson, Eden G, Wakefield, Claire E, Tsoli, Maria, Kellie, Stewart J, Alvaro, Frank, Gifford, Andrew J, Weber, Martin A, Rodriguez, Michael, Kirby, Maria, Ziegler, David S
Publicado 2021

Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: a mixed-method pilot study protocol

por Robertson, Eden G, Kelada, Lauren, Best, Stephanie, Goranitis, I, Grainger, Natalie, Le Marne, Fleur, Pierce, Kristine, Nevin, Suzanne M, Macintosh, Rebecca, Beavis, Erin, Sachdev, Rani, Bye, Annie, Palmer, Elizabeth E
Publicado 2022

What’s in a Name? Parents’ and Healthcare Professionals’ Preferred Terminology for Pathogenic Variants in Childhood Cancer Predisposition Genes

por Hunter, Jacqueline D., Robertson, Eden G., Hetherington, Kate, Ziegler, David S., Marshall, Glenn M., Kirk, Judy, Marron, Jonathan M., Denburg, Avram E., Barlow-Stewart, Kristine, Warby, Meera, Tucker, Katherine M., Lee, Brittany M., O’Brien, Tracey A., Wakefield, Claire E.
Publicado 2022

Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives

por Wakefield, Claire E., Hetherington, Kate, Robertson, Eden G., Donoghoe, Mark W., Hunter, Jacqueline D., Vetsch, Janine, Marron, Jonathan M., Tucker, Katherine M., Marshall, Glenn M., Broom, Alexander, Haber, Michelle, Tyrrell, Vanessa, Malkin, David, Lau, Loretta, Mateos, Marion K., O’Brien, Tracey A., Ziegler, David S.
Publicado 2023

Providing Psychological Support to Parents of Childhood Cancer Survivors: ‘Cascade’ Intervention Trial Results and Lessons for the Future

por Wakefield, Claire E., Sansom-Daly, Ursula M., McGill, Brittany C., Hetherington, Kate, Ellis, Sarah J., Robertson, Eden G., Donoghoe, Mark W., McCarthy, Maria, Kelada, Lauren, Girgis, Afaf, King, Madeleine, Grootenhuis, Martha, Anazodo, Antoinette, Patterson, Pandora, Lowe, Cherie, Dalla-Pozza, Luciano, Miles, Gordon, Cohn, Richard J.
Publicado 2021