Scleroderma Patient-centered Intervention Network—Scleroderma Support group Leader EDucation (SPIN-SSLED) program: non-randomised feasibility trial

por Thombs, Brett D, Dyas, Laura, Pépin, Mia, Aguila, Kylene, Carrier, Marie-Eve, Tao, Lydia, Harb, Sami, Malcarne, Vanessa L, El-Baalbaki, Ghassan, Peláez, Sandra, Sauve, Maureen, Hudson, Marie, Platt, Robert W
Publicado 2019

Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (S...

por Thombs, Brett D., Aguila, Kylene, Dyas, Laura, Carrier, Marie-Eve, Fedoruk, Claire, Horwood, Linda, Cañedo-Ayala, Mara, Sauvé, Maureen, Kwakkenbos, Linda, Malcarne, Vanessa L., El-Baalbaki, Ghassan, Peláez, Sandra, Connolly, Kerri, Hudson, Marie, Platt, Robert W.
Publicado 2019

Collaboration between patient organisations and a clinical research sponsor in a rare disease condition: learnings from a community advisory board and best practice for future coll...

por Roennow, Annelise, Sauvé, Maureen, Welling, Joep, Riggs, Robert J, Kennedy, Ann Tyrrell, Galetti, Ilaria, Brown, Edith, Leite, Catarina, Gonzalez, Alex, Portales Guiraud, Alexandra Paula, Houÿez, François, Camp, Rob, Gilbert, Annie, Gahlemann, Martina, Moros, Lizette, Luna Flores, Jose Luis, Schmidt, Friedrich, Sauter, Wiebke, Finnern, Henrik
Publicado 2020

Effects of non-pharmacological and non-surgical interventions on health outcomes in systemic sclerosis: protocol for a living systematic review

por Discepola, Marie-Nicole, Carboni-Jiménez, Andrea, Kwakkenbos, Linda, Henry, Richard S, Boruff, Jill, Krishnan, Ankur, Boström, Carina, Culos-Reed, S Nicole, Hudson, Marie, Leader, David M, Mattsson, Malin, Mouthon, Luc, Wojeck, Robyn, Yakes Jimenez, Elizabeth, Sauve, Maureen, Welling, Joep, Guillot, Geneviève, Benedetti, Andrea, Thombs, Brett D
Publicado 2021

Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND)

por Kwakkenbos, Linda, Carrier, Marie-Eve, Welling, Joep, Turner, Kimberly A., Cumin, Julie, Pépin, Mia, van den Ende, Cornelia, Schouffoer, Anne A., Hudson, Marie, van Breda, Ward, Sauve, Maureen, Mayes, Maureen D., Malcarne, Vanessa L., Nielson, Warren R., Nguyen, Christelle, Boutron, Isabelle, Rannou, François, Thombs, Brett D., Mouthon, Luc
Publicado 2022

Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Inte...

por Kwakkenbos, Linda, Carrier, Marie-Eve, Welling, Joep, Levis, Brooke, Levis, Alexander W., Sauve, Maureen, Turner, Kimberly A., Tao, Lydia, Aguila, Kylene, Carboni-Jiménez, Andrea, Cañedo-Ayala, Mara, Harb, Sami, van den Ende, Cornelia, Hudson, Marie, van Breda, Ward, Nguyen, Christelle, Boutron, Isabelle, Rannou, François, Thombs, Brett D., Mouthon, Luc
Publicado 2022

Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups:...

por Thombs, Brett D., Levis, Brooke, Carrier, Marie-Eve, Dyas, Laura, Nordlund, Julia, Tao, Lydia, Aguila, Kylene, Bourgeault, Angelica, Konrad, Violet, Sauvé, Maureen, Connolly, Kerri, Henry, Richard S., Østbø, Nora, Levis, Alexander W., Kwakkenbos, Linda, Malcarne, Vanessa L., El-Baalbaki, Ghassan, Hudson, Marie, Wurz, Amanda, Culos-Reed, S. Nicole, Platt, Robert W., Benedetti, Andrea
Publicado 2022

Protocol for the development of a CONSORT extension for RCTs using cohorts and routinely collected health data

por Kwakkenbos, Linda, Juszczak, Edmund, Hemkens, Lars G, Sampson, Margaret, Fröbert, Ole, Relton, Clare, Gale, Chris, Zwarenstein, Merrick, Langan, Sinéad M, Moher, David, Boutron, Isabelle, Ravaud, Philippe, Campbell, Marion K, Mc Cord, Kimberly A, van Staa, Tjeerd P, Thabane, Lehana, Uher, Rudolf, Verkooijen, Helena M, Benchimol, Eric I, Erlinge, David, Sauvé, Maureen, Torgerson, David, Thombs, Brett D
Publicado 2018

Protocol for a scoping review to support development of a CONSORT extension for randomised controlled trials using cohorts and routinely collected health data

por Kwakkenbos, Linda, Imran, Mahrukh, McCord, Kimberly A, Sampson, Margaret, Fröbert, Ole, Gale, Chris, Hemkens, Lars G, Langan, Sinead M, Moher, David, Relton, Clare, Zwarenstein, Merrick, Benchimol, Eric I, Boutron, Isabelle, Campbell, Marion K, Erlinge, David, Jawad, Sena, Ravaud, Philippe, Rice, Danielle B, Sauve, Maureen, van Staa, Tjeerd P, Thabane, Lehana, Uher, Rudolf, Verkooijen, Helena M, Juszczak, Edmund, Thombs, Brett D
Publicado 2018

CONSORT extension for the reporting of randomised controlled trials conducted using cohorts and routinely collected data (CONSORT-ROUTINE): checklist with explanation and elaborati...

por Kwakkenbos, Linda, Imran, Mahrukh, McCall, Stephen J, McCord, Kimberly A, Fröbert, Ole, Hemkens, Lars G, Zwarenstein, Merrick, Relton, Clare, Rice, Danielle B, Langan, Sinéad M, Benchimol, Eric I, Thabane, Lehana, Campbell, Marion K, Sampson, Margaret, Erlinge, David, Verkooijen, Helena M, Moher, David, Boutron, Isabelle, Ravaud, Philippe, Nicholl, Jon, Uher, Rudolf, Sauvé, Maureen, Fletcher, John, Torgerson, David, Gale, Chris, Juszczak, Edmund, Thombs, Brett D
Publicado 2021

Methods and results used in the development of a consensus-driven extension to the Consolidated Standards of Reporting Trials (CONSORT) statement for trials conducted using cohorts...

por Imran, Mahrukh, Kwakkenbos, Linda, McCall, Stephen J, McCord, Kimberly A, Fröbert, Ole, Hemkens, Lars G, Zwarenstein, Merrick, Relton, Clare, Rice, Danielle B, Langan, Sinéad M, Benchimol, Eric I, Thabane, Lehana, Campbell, Marion K, Sampson, Margaret, Erlinge, David, Verkooijen, Helena M, Moher, David, Boutron, Isabelle, Ravaud, Philippe, Nicholl, Jon, Uher, Rudolf, Sauvé, Maureen, Fletcher, John, Torgerson, David, Gale, Chris, Juszczak, Edmund, Thombs, Brett D
Publicado 2021

The Scleroderma Patient-Centered Intervention Network Self-Management Program: Protocol for a Randomized Feasibility Trial

por Carrier, Marie-Eve, Kwakkenbos, Linda, Nielson, Warren R, Fedoruk, Claire, Nielsen, Karen, Milette, Katherine, Pope, Janet, Frech, Tracy, Gholizadeh, Shadi, Hummers, Laura, Johnson, Sindhu R, Piotrowski, Pamela, Jewett, Lisa, Gordon, Jessica, Chung, Lorinda, Bilsker, Dan, Turner, Kimberly A, Cumin, Julie, Welling, Joep, Fortune, Catherine, Leite, Catarina, Gottesman, Karen, Sauve, Maureen, Rodríguez-Reyna, Tatiana S, Hudson, Marie, Larche, Maggie, van Breda, Ward, Suarez-Almazor, Maria E, Bartlett, Susan J, Malcarne, Vanessa L, Mayes, Maureen D, Boutron, Isabelle, Mouthon, Luc, Wigley, Fredrick, Thombs, Brett D
Publicado 2020

Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program

por Kwakkenbos, Linda, Østbø, Nora, Carrier, Marie-Eve, Nielson, Warren R., Fedoruk, Claire, Levis, Brooke, Henry, Richard S., Pope, Janet, Frech, Tracy, Gholizadeh, Shadi, Johnson, Sindhu R., Piotrowski, Pamela, Jewett, Lisa R., Gordon, Jessica, Chung, Lorinda, Bilsker, Dan, Tao, Lydia, Turner, Kimberly A., Cumin, Julie, Welling, Joep, Fortuné, Catherine, Leite, Catarina, Gottesman, Karen, Sauvé, Maureen, Reyna, Tatiana Sofia Rodriguez, Hudson, Marie, Larche, Maggie, van Breda, Ward, Suarez-Almazor, Maria E., Bartlett, Susan J., Malcarne, Vanessa L., Mayes, Maureen D., Boutron, Isabelle, Mouthon, Luc, Benedetti, Andrea, Thombs, Brett D.
Publicado 2022

The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and...

por Kwakkenbos, Linda, Jewett, Lisa R, Baron, Murray, Bartlett, Susan J, Furst, Dan, Gottesman, Karen, Khanna, Dinesh, Malcarne, Vanessa L, Mayes, Maureen D, Mouthon, Luc, Poiraudeau, Serge, Sauve, Maureen, Nielson, Warren R, Poole, Janet L, Assassi, Shervin, Boutron, Isabelle, Ells, Carolyn, van den Ende, Cornelia HM, Hudson, Marie, Impens, Ann, Körner, Annett, Leite, Catarina, Costa Maia, Angela, Mendelson, Cindy, Pope, Janet, Steele, Russell J, Suarez-Almazor, Maria E, Ahmed, Sara, Coronado-Montoya, Stephanie, Delisle, Vanessa C, Gholizadeh, Shadi, Jang, Yeona, Levis, Brooke, Milette, Katherine, Mills, Sarah D, Razykov, Ilya, Fox, Rina S, Thombs, Brett D
Publicado 2013

The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial...

por Nordlund, Julia, Henry, Richard S., Kwakkenbos, Linda, Carrier, Marie-Eve, Levis, Brooke, Nielson, Warren R., Bartlett, Susan J., Dyas, Laura, Tao, Lydia, Fedoruk, Claire, Nielsen, Karen, Hudson, Marie, Pope, Janet, Frech, Tracy, Gholizadeh, Shadi, Johnson, Sindhu R., Piotrowski, Pamela, Jewett, Lisa R., Gordon, Jessica, Chung, Lorinda, Bilsker, Dan, Levis, Alexander W., Turner, Kimberly A., Cumin, Julie, Welling, Joep, Fortuné, Catherine, Leite, Catarina, Gottesman, Karen, Sauve, Maureen, Rodríguez-Reyna, Tatiana Sofía, Larche, Maggie, van Breda, Ward, Suarez-Almazor, Maria E., Wurz, Amanda, Culos-Reed, Nicole, Malcarne, Vanessa L., Mayes, Maureen D., Boutron, Isabelle, Mouthon, Luc, Benedetti, Andrea, Thombs, Brett D.
Publicado 2021