Quality of life: Guidelines for the care of people with spina bifida

por Sawin, Kathleen J., Brei, Timothy J., Houtrow, Amy J.
Publicado 2020

The Impact of COVID-19 on Systems of Care for Children and Youth With Special Health Care Needs

por Cohen, Sally S., Toly, Valerie Boebel, Lerret, Stacee M., Sawin, Kathleen J.
Publicado 2023

The meaning of quality of life in adolescents with spina bifida and their parents

por Sawin, Kathleen J, Brei, Timothy J, Stevens, Suzanne, Neufeld, Jay, Buran, Constance F
Publicado 2006

Further development of the adolescent self management and independence scale: AMIS II

por Buran, Constance F, Brei, Timothy J, Sawin, Kathleen J, Stevens, Suzanne, Neufeld, Jay
Publicado 2006

Self-management and independence guidelines for the care of people with spina bifida

por Logan, Lynne Romeiser, Sawin, Kathleen J., Bellin, Melissa H., Brei, Timothy, Woodward, Jason
Publicado 2020

Secondary conditions in adolescents and young adults (AYA) with spina bifida (SB) in Four US Programs

por Brei, Timothy J, Sawin, Kathleen J, Buran, Constance, Webb, Thomas, Cashin, Susan E, Heffelfinger, Amy
Publicado 2010

Testing a model of adaptation in adolescents and young adults (AYA) with spina bifida (SB)

por Sawin, Kathleen J, Brei, Timothy J, Heffelfinger, Amy, Cashin, Susan E, Webb, Thomas S, Buran, Constance F
Publicado 2010

Energy expenditure and weight-related behaviors in youth with Down syndrome: a protocol

por Polfuss, Michele, Bandini, Linda G., Ravelli, Michele N., Huang, Zijian, Moosreiner, Andrea, Schoeller, Dale A., Huang, Chiang-Ching, Ding, Dan, Berry, Cristen, Marston, Emma, Hussain, Azeem, Shriver, Timothy C., Sawin, Kathleen J.
Publicado 2023