Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis

por Schickhardt, Christoph, Fleischer, Henrike, Winkler, Eva C.
Publicado 2020

Dateninfrastrukturen für die Gesundheitsforschung: Ethische Rahmenbedingungen und rechtliche Umsetzung

por Schickhardt, Christoph, Winkler, Eva, Sax, Ulrich, Buchner, Benedikt
Publicado 2023

Neither carrots nor sticks? Challenges surrounding data sharing from the perspective of research funding agencies—A qualitative expert interview study

por Anger, Michael, Wendelborn, Christian, Winkler, Eva C., Schickhardt, Christoph
Publicado 2022

Secondary Use of Clinical Data in Data-Gathering, Non-Interventional Research or Learning Activities: Definition, Types, and a Framework for Risk Assessment

por Jungkunz, Martin, Köngeter, Anja, Mehlis, Katja, Winkler, Eva C, Schickhardt, Christoph
Publicado 2021

Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer...

por Köngeter, Anja, Schickhardt, Christoph, Jungkunz, Martin, Bergbold, Susanne, Mehlis, Katja, Winkler, Eva C
Publicado 2022

Applying systems biology to biomedical research and health care: a précising definition of systems medicine

por Schleidgen, Sebastian, Fernau, Sandra, Fleischer, Henrike, Schickhardt, Christoph, Oßa, Ann-Kristin, Winkler, Eva C.
Publicado 2017

So rare we need to hunt for them: reframing the ethical debate on incidental findings

por Schuol, Sebastian, Schickhardt, Christoph, Wiemann, Stefan, Bartram, Claus R., Tanner, Klaus, Eils, Roland, Meder, Benjamin, Richter, Daniela, Glimm, Hanno, von Kalle, Christof, Winkler, Eva C.
Publicado 2015