Partnering to power progress towards a paradigm shift: Response to Riggare et al

por Cone, Lisa, Feeney, Megan, Evers, Christiana, Agpalo, Danielle, Fleisher, Jori, Schroeder, Karlin
Publicado 2020

Utilizing patient advocates in Parkinson’s disease: A proposed framework for patient engagement and the modern metrics that can determine its success

por Feeney, Megan, Evers, Christiana, Agpalo, Danielle, Cone, Lisa, Fleisher, Jori, Schroeder, Karlin
Publicado 2020

The value of co-creating a clinical outcome assessment strategy for clinical trial research: process and lessons learnt

por Morel, Thomas, Schroeder, Karlin, Cleanthous, Sophie, Andrejack, John, Blavat, Geraldine, Brooks, William, Gosden, Lesley, Siu, Carroll, Ratcliffe, Natasha, Slagle, Ashley F.
Publicado 2023

Building from Patient Experiences to Deliver Patient-Focused Healthcare Systems in Collaboration with Patients: A Call to Action

por Schroeder, Karlin, Bertelsen, Neil, Scott, Jessica, Deane, Katherine, Dormer, Laura, Nair, Devika, Elliott, Jim, Krug, Sarah, Sargeant, Ify, Chapman, Hayley, Brooke, Nicholas
Publicado 2022

Patient Experience in Early-Stage Parkinson’s Disease: Using a Mixed Methods Analysis to Identify Which Concepts Are Cardinal for Clinical Trial Outcome Assessment

por Morel, Thomas, Cleanthous, Sophie, Andrejack, John, Barker, Roger A., Blavat, Geraldine, Brooks, William, Burns, Paul, Cano, Stefan, Gallagher, Casey, Gosden, Lesley, Siu, Carroll, Slagle, Ashley F., Trenam, Kate, Boroojerdi, Babak, Ratcliffe, Natasha, Schroeder, Karlin
Publicado 2022

Development and early qualitative evidence of two novel patient-reported outcome instruments to assess daily functioning in people with early-stage Parkinson’s

por Morel, Thomas, Cleanthous, Sophie, Andrejack, John, Barker, Roger A., Biagioni, Milton, Blavat, Geraldine, Bloem, Bastiaan R., Boroojerdi, Babak, Brooks, William, Burns, Paul, Cano, Stefan, Gallagher, Casey, Gosden, Lesley, Siu, Carroll, Slagle, Ashley F., Ratcliffe, Natasha, Schroeder, Karlin
Publicado 2023

Expediting telehealth use in clinical research studies: recommendations for overcoming barriers in North America

por Naito, Anna, Wills, Anne-Marie, Tropea, Thomas F., Ramirez-Zamora, Adolfo, Hauser, Robert A., Martino, Davide, Turner, Travis H., Rafferty, Miriam R., Afshari, Mitra, Williams, Karen L., Vaou, Okeanis, McKeown, Martin J., Ginsburg, Letty, Ezra, Adi, Iansek, Robert, Wallock, Kristin, Evers, Christiana, Schroeder, Karlin, DeLeon, Rebeca, Yarab, Nicole, Alcalay, Roy N., Beck, James C.
Publicado 2021