Ageing in rare, chronic diseases

por Smit, Cees
Publicado 2010

Seventy years of haemophilia care: A personal perspective

por Smit, Cees
Publicado 2021

The legacy of haemophilia: Memories and reflections from three survivors

por Farrugia, Albert, Smit, Cees, Buzzi, Andrea
Publicado 2022

Patients to learn from: on the need for systematic integration of research and care in academic health care

por Boeckhout, Martin, Scheltens, Philip, Manders, Peggy, Smit, Cees, Bredenoord, Annelien L, Zielhuis, Gerhard A
Publicado 2017

The impact of non-response bias due to sampling in public health studies: A comparison of voluntary versus mandatory recruitment in a Dutch national survey on adolescent health

por Cheung, Kei Long, ten Klooster, Peter M., Smit, Cees, de Vries, Hein, Pieterse, Marcel E.
Publicado 2017

Adherence to prophylaxis and its association with activation of self‐management and treatment satisfaction

por Hoefnagels, Johanna Wilhelmina, Schrijvers, Liesbeth Hélène, Leebeek, Frank W. G., Eikenboom, Jeroen, Schols, Saskia E. M., Smit, Cees, Schutgens, Roger E. G., Gouw, Samantha C., Fischer, Kathelijn
Publicado 2021

Integrating evidence on patient preferences in healthcare policy decisions: protocol of the patient-VIP study

por Dirksen, Carmen D, Utens, Cecile MA, Joore, Manuela A, van Barneveld, Teus A, Boer, Bert, Dreesens, Dunja HH, van Laarhoven, Hans, Smit, Cees, Stiggelbout, Anne M, van der Weijden, Trudy
Publicado 2013

Patient Perspectives on Novel Treatments in Haemophilia: A Qualitative Study

por van Balen, Erna C., Wesselo, Marjolein L., Baker, Bridget L., Westerman, Marjan J., Coppens, Michiel, Smit, Cees, Driessens, Mariëtte H. E., Leebeek, Frank W. G., van der Bom, Johanna G., Gouw, Samantha C.
Publicado 2019

Similar sports participation as the general population in Dutch persons with haemophilia; results from a nationwide study

por Versloot, Olav, van Balen, Erna C., Hassan, Shermarke, Schols, Saskia E.M., Leebeek, Frank W.G., Eikenboom, Jeroen, Coppens, Michiel, van Vulpen, Lize F.D., Smit, Cees, Driessens, Mariëtte H.E., van der Net, Janjaap, Gouw, Samantha C., Fischer, Kathelijn
Publicado 2021

Patient‐relevant health outcomes for hemophilia care: Development of an international standard outcomes set

por van Balen, Erna C., O'Mahony, Brian, Cnossen, Marjon H., Dolan, Gerard, Blanchette, Victor S., Fischer, Kathelijn, Gue, Deborah, O'Hara, Jamie, Iorio, Alfonso, Jackson, Shannon, Konkle, Barbara A., Nugent, Diane J., Coffin, Donna, Skinner, Mark W., Smit, Cees, Srivastava, Alok, van Eenennaam, Fred, van der Bom, Johanna G., Gouw, Samantha C.
Publicado 2021

Hepatitis C virus in hemophilia: Health‐related quality of life after successful treatment in the sixth Hemophilia in the Netherlands study

por Isfordink, Cas J., Gouw, Samantha C., van Balen, Erna C., Hassan, Shermarke, Beckers, Erik A. M., van der Bom, Johanna G., Coppens, Michiel, Eikenboom, Jeroen, Fischer, Kathelijn, Hooimeijer, Louise, Leebeek, Frank W. G., Rosendaal, Frits R., Schols, Saskia E. M., Smit, Cees, van Vulpen, Lize F. D., Mauser‐Bunschoten, Eveline P.
Publicado 2021

Socioeconomic participation of persons with hemophilia: Results from the sixth hemophilia in the Netherlands study

por van Balen, Erna C., Hassan, Shermarke, Smit, Cees, Driessens, Mariette H. E., Beckers, Erik A. M., Coppens, Michiel, Eikenboom, Jeroen C., Hooimeijer, Hélène L., Leebeek, Frank W. G., Mauser‐Bunschoten, Evelien P., van Vulpen, Lize F. D., Schols, Saskia E. M., Rosendaal, Frits R., van der Bom, Johanna G., Gouw, Samantha C.
Publicado 2022

Desmopressin in nonsevere hemophilia A: patient perspectives on use and efficacy

por Romano, Lorenzo G.R., van Vulpen, Lize F.D., den Exter, Paul L., Heubel-Moenen, Floor C.J.I., Hooijmeijer, Helene L., Coppens, Michiel, Fijnvandraat, Karin, Schols, Saskia E.M., Ypma, Paula F., Smit, Cees, Driessens, Mariëtte H.E., Rosendaal, Frits R., van der Bom, Johanna G., Gouw, Samantha C., Kruip, Marieke J.H.A.
Publicado 2023

Health and treatment outcomes of patients with hemophilia in the Netherlands, 1972–2019

por Hassan, Shermarke, van Balen, Erna C., Smit, Cees, Mauser‐Bunschoten, Evelien P., van Vulpen, Lize F. D., Eikenboom, Jeroen, Beckers, Erik A. M., Hooimeijer, Louise, Ypma, Paula F., Nieuwenhuizen, Laurens, Coppens, Michiel, Schols, Saskia E. M., Leebeek, Frank W. G., Driessens, Mariëtte H., Rosendaal, Frits R., van der Bom, Johanna G., Gouw, Samantha C.
Publicado 2021

Validation of PROMIS Profile‐29 in adults with hemophilia in the Netherlands

por van Balen, Erna C., Haverman, Lotte, Hassan, Shermarke, Taal, Elisabeth M., Smit, Cees, Driessens, Mariëtte H., Beckers, Erik A. M., Coppens, Michiel, Eikenboom, Jeroen, Hooimeijer, Hélène L., Leebeek, Frank W. G., van Vulpen, Lize F. D., Schols, Saskia E. M., Terwee, Caroline B., Rosendaal, Frits R., van der Bom, Johanna G., Gouw, Samantha C.
Publicado 2021

Mortality, life expectancy, and causes of death of persons with hemophilia in the Netherlands 2001–2018

por Hassan, Shermarke, Monahan, Rory C., Mauser‐Bunschoten, Evelien P., van Vulpen, Lize F. D., Eikenboom, Jeroen, Beckers, Erik A. M., Hooimeijer, Louise, Ypma, Paula F., Nieuwenhuizen, Laurens, Coppens, Michiel, Schols, Saskia E. M., Leebeek, Frank W. G., Smit, Cees, Driessens, Mariëtte H., le Cessie, Saskia, van Balen, Erna C., Rosendaal, Frits R., van der Bom, Johanna G., Gouw, Samantha C.
Publicado 2020