PB2547: ESTIMATING HEALTH-RELATED QUALITY OF LIFE IN ADULT PYRUVATE KINASE DEFICIENCY: A TIME TRADE-OFF UTILITY STUDY

por Higa, Sara, Chua, Gin Nie, Sussex, Anna-Katrine, Lloyd, Andrew, LI, Junlong, Patel, Parija, Morris, Susan, Zagadailov, Erin
Publicado 2023

Quality of Life with Late-Onset Pompe Disease: Qualitative Interviews and General Public Utility Estimation in the United Kingdom

por Hubig, Lena, Sussex, Anna-Katrine, MacCulloch, Alasdair, Hughes, Derralynn, Graham, Ryan, Morris, Liz, Raza, Syed, Lloyd, Andrew J., Sowinski, Amanda, Gallop, Katy
Publicado 2023