A qualitative study to explore symptoms and impacts of pediatric and adolescent Crohn’s disease from patient and caregiver perspective

por Newton, Louise, Delbecque, Laure, Coşkun, Ufuk, Symonds, Tara, Clegg, Jennifer, Hunter, Theresa
Publicado 2021

A novel patient-reported outcome instrument assessing the symptoms of paroxysmal nocturnal hemoglobinuria, the PNH-SQ

por Daly, R. Paola, Jalbert, Jessica J., Keith, Shannon, Symonds, Tara, Shammo, Jamile
Publicado 2021

Qualitative research to explore the symptoms and impacts experienced by children with ulcerative colitis

por Randall, Jason A., Guobyte, Aiste, Delbecque, Laure, Newton, Louise, Symonds, Tara, Hunter, Theresa
Publicado 2020

2516. Development of a de novo Patient-Reported Outcome (PRO) Measure to Assess the Impacts of Disseminated Coccidioidomycosis [Valley Fever] on Patients Living with the Condition

por Harvey, Emma L, Bresnik, Mark, Symonds, Tara, Blatt, Elliott, Hughes, Sophie, Purdie, Rob, Clegg, Jennifer L
Publicado 2023

What Outcomes are Important for Gout Patients? In-Depth Qualitative Research into the Gout Patient Experience to Determine Optimal Endpoints for Evaluating Therapeutic Intervention...

por Tatlock, Sophi, Rüdell, Katja, Panter, Charlotte, Arbuckle, Rob, Harrold, Leslie R., Taylor, William J., Symonds, Tara
Publicado 2016

Measuring the impact of trigeminal neuralgia pain: the Penn Facial Pain Scale-Revised

por Symonds, Tara, Randall, Jason A, Hoffman, Deborah L, Zakrzewska, Joanna M, Gehringer, William, Lee, John YK
Publicado 2018

Burden of illness of trigeminal neuralgia among patients managed in a specialist center in England

por O’Callaghan, Lasair, Floden, Lysbeth, Vinikoor-Imler, Lisa, Symonds, Tara, Giblin, Kathryn, Hartford, Chris, Zakrzewska, Joanna M.
Publicado 2020

Developing Angelman syndrome-specific clinician-reported and caregiver-reported measures to support holistic, patient-centered drug development

por Connor-Ahmad, Siobhan, Tjeertes, Jorrit, Chladek, Michael, Newton, Louise, Symonds, Tara, Clinch, Susanne, Vincenzi, Brenda, McDougall, Fiona
Publicado 2023

Validation of the novel Eosinophilic Esophagitis Impact Questionnaire

por McCann, Eilish, Chehade, Mirna, Spergel, Jonathan M., Yaworsky, Andrew, Symonds, Tara, Stokes, Jonathan, Tilton, Sarette T., Sun, Xian, Kamat, Siddhesh
Publicado 2023

Qualitative Patient Interviews to Characterize the Human Burden of Advanced Basal Cell Carcinoma Following Hedgehog Pathway Inhibitor Treatment

por Konidaris, Gerasimos, Rofail, Diana, Randall, Jason, LaFontaine, Patrick R., Chen, Chieh-I., Bury, Denise, Geiger, Ashley, Sasane, Medha, Symonds, Tara
Publicado 2023

Validation of the 5-domain Niemann-Pick type C Clinical Severity Scale

por Patterson, Marc C., Lloyd-Price, Lucy, Guldberg, Christina, Doll, Helen, Burbridge, Claire, Chladek, Michael, íDali, Christine, Mengel, Eugen, Symonds, Tara
Publicado 2021

Content validity of a newly developed observer-reported measure for pediatric asthma in children aged 2–5 years

por Zhang, Yi, Clegg, Jennifer L., Keith, Shannon, McFadden, Shehan, Symonds, Tara, Kumar, Rajesh, Khan, Asif H., Kamat, Siddhesh, Chao, Jingdong
Publicado 2022

Assessment of sleep in patients with fibromyalgia: qualitative development of the fibromyalgia sleep diary

por Kleinman, Leah, Mannix, Sally, Arnold, Lesley M, Burbridge, Claire, Howard, Kellee, McQuarrie, Kelly, Pitman, Verne, Resnick, Malca, Roth, Tom, Symonds, Tara
Publicado 2014

Comparability of a provisioned device versus bring your own device for completion of patient-reported outcome measures by participants with chronic obstructive pulmonary disease: q...

por Newton, Louise, Knight-West, Oliver, Eremenco, Sonya, Hudgens, Stacie, Crescioni, Mabel, Symonds, Tara, Reasner, David S., Byrom, Bill, O’Donohoe, Paul, Vallow, Susan
Publicado 2022

Impacts and Burden of Niemann pick Type-C: a patient and caregiver perspective

por Mengel, Eugen, Patterson, Marc C., Chladek, Michael, Guldberg, Christina, í Dali, Christine, Symonds, Tara, Lloyd-Price, Lucy, Mathieson, Toni, Crowe, Joslyn, Burbridge, Claire
Publicado 2021

Comparability of a provisioned device versus bring your own device for completion of patient-reported outcome measures by participants with chronic obstructive pulmonary disease: q...

por Hudgens, Stacie, Newton, Louise, Eremenco, Sonya, Crescioni, Mabel, Symonds, Tara, Griffiths, Philip C. G., Reasner, David S., Byrom, Bill, O’Donohoe, Paul, Vallow, Susan
Publicado 2022

Exploring Disease Remission and Bowel Urgency Severity Among Adults with Moderate to Severe Ulcerative Colitis: A Qualitative Study

por Dubinsky, Marla C, Newton, Louise, Delbecque, Laure, Hunter, Theresa, Guobyte, Aiste, Naegeli, April N, McFadden, Shehan, Donaldson, Jill, Symonds, Tara, Lewis, James D
Publicado 2022

Symptoms and Dietary Impact in Hypertriglyceridemia-Associated Pancreatitis: Development and Content Validity of Two New Measures

por Burbridge, Claire, Randall, Jason A., Sanchez, Robert J., Dansky, Hayes, Symonds, Tara, Girman, Cynthia J., Strayer, Joshua A., Selk, Karen L., Whitcomb, David C., Kershaw, Erin E.
Publicado 2019

A qualitative study exploring the health-related quality of life and symptomatic experiences of adults and adolescents with ulcerative colitis

por Newton, Louise, Randall, Jason A., Hunter, Theresa, Keith, Shannon, Symonds, Tara, Secrest, Roberta J., Komocsar, Wendy J., Curtis, Sarah E., Abetz-Webb, Linda, Kappelman, Michael, Naegeli, April N.
Publicado 2019

Treatment preference and quality of life impact: ravulizumab vs eculizumab for atypical hemolytic uremic syndrome

por Mauch, Teri J, Chladek, Michael R, Cataland, Spero, Chaturvedi, Shruti, Dixon, Bradley P, Garlo, Katherine, Gasteyger, Christoph, Java, Anuja, Leguizamo, Jorge, Lloyd-Price, Lucy, Pham, Tan P, Symonds, Tara, Tomazos, Ioannis, Wang, Yan
Publicado 2023