A Canadian Adult Spinal Muscular Atrophy Outcome Measures Toolkit: Results of a National Consensus using a Modified Delphi Method

por Slayter, Jeremy, Hodgkinson, Victoria, Lounsberry, Josh, Brais, Bernard, Chapman, Kristine, Genge, Angela, Izenberg, Aaron, Johnston, Wendy, Lochmüller, Hanns, O’Ferrall, Erin, Pfeffer, Gerald, Plamondon, Stephanie, Rodrigue, Xavier, Schellenberg, Kerri, Shoesmith, Christen, Stables, Christine, Taillon, Monique, Warman-Chardon, Jodi, Korngut, Lawrence, O’Connell, Colleen
Publicado 2021

A National Spinal Muscular Atrophy Registry for Real-World Evidence

por Hodgkinson, Victoria L., Oskoui, Maryam, Lounsberry, Joshua, M’Dahoma, Saïd, Butler, Emily, Campbell, Craig, MacKenzie, Alex, McMillan, Hugh J., Simard, Louise, Vajsar, Jiri, Brais, Bernard, Chapman, Kristine M., Chrestian, Nicolas, Crone, Meghan, Dobrowolski, Peter, Dojeiji, Susan, Dowling, James J., Dupré, Nicolas, Genge, Angela, Gonorazky, Hernan, Hasal, Simona, Izenberg, Aaron, Johnston, Wendy, Leung, Edward, Lochmüller, Hanns, Mah, Jean K., Marerro, Alier, Massie, Rami, McAdam, Laura, McCormick, Anna, Melanson, Michel, Mezei, Michelle M., Nguyen, Cam-Tu E., O’Connell, Colleen, O’Ferrall, Erin K., Pfeffer, Gerald, Phan, Cecile, Plamondon, Stephanie, Poulin, Chantal, Rodrigue, Xavier, Schellenberg, Kerri L., Selby, Kathy, Sheriko, Jordan, Shoesmith, Christen, Smith, Garth, Taillon, Monique, Taylor, Sean, Warman Chardon, Jodi, Worley, Scott, Korngut, Lawrence
Publicado 2020