The health of children and adolescents – new data is needed!

por Thyen, Ute
Publicado 2023

Das biopsychosoziale Verständnis von Gesundheitsstörungen und Beeinträchtigungen bei Kindern mit Fokus auf entwicklungsneurologische Zusammenhänge

por Thyen, Ute, Spiegler, Juliane, Konrad, Kerstin
Publicado 2023

Clinical evaluation study of the German network of disorders of sex development (DSD)/intersexuality: study design, description of the study population, and data quality

por Lux, Anke, Kropf, Siegfried, Kleinemeier, Eva, Jürgensen, Martina, Thyen, Ute
Publicado 2009

Ethical principles and recommendations for the medical management of differences of sex development (DSD)/intersex in children and adolescents

por Wiesemann, Claudia, Ude-Koeller, Susanne, Sinnecker, Gernot H. G., Thyen, Ute
Publicado 2009

The Youth Health Care measure-satisfaction, utilization, and needs (YHC-SUN)-development of a self-report version of the Child Health Care (CHC-SUN) proxy-measure

por Schmidt, Silke, Thyen, Ute, Herrmann-Garitz, Carsten, Bomba, Franziska, Muehlan, Holger
Publicado 2016

A Short Form of the Child/Youth Health Care Questionnaire on Satisfaction, Utilization, and Needs in Children and Adolescents with a Chronic Condition (CHC-SUN-SF/YHC-SUN-SF)

por Muehlan, Holger, Markwart, Henriette, Menrath, Ingo, Ernst, Gundula, Thyen, Ute, Schmidt, Silke
Publicado 2021

The influence of psychosocial and sexual wellbeing on quality of life in women with differences of sexual development

por Liedmeier, Ariane, Jendryczko, David, Rapp, Marion, Roehle, Robert, Thyen, Ute, Kreukels, Baudewijntje P.C.
Publicado 2021

Assessing empowerment as multidimensional outcome of a patient education program for adolescents with chronic conditions: A latent difference score model

por Markwart, Henriette, Bomba, Franziska, Menrath, Ingo, Brenk-Franz, Katja, Ernst, Gundula, Thyen, Ute, Hildebrandt, Andrea, Schmidt, Silke
Publicado 2020

Assessing the health-related management of people with differences of sex development

por Jürgensen, Martina, Rapp, Marion, Döhnert, Ulla, Frielitz, Fabian-Simon, Ahmed, Faisal, Cools, Martine, Thyen, Ute, Hiort, Olaf
Publicado 2021

Minimal Associations Between Clinical Data and Children's Self-Reported Health-Related Quality of Life in Children With Chronic Conditions—A Cross-Sectional Study

por Fischer, Kathrin I., Barthel, Dana, Otto, Christiane, Ravens-Sieberer, Ulrike, Thyen, Ute, Klein, Marcus, Walter, Otto, Rose, Matthias, Nolte, Sandra
Publicado 2019

Multicentre cross-sectional clinical evaluation study about quality of life in adults with disorders/differences of sex development (DSD) compared to country specific reference pop...

por Rapp, Marion, Mueller-Godeffroy, Esther, Lee, Peter, Roehle, Robert, Kreukels, Baudewijntje P. C., Köhler, Birgit, Nordenström, Anna, Bouvattier, Claire, Thyen, Ute
Publicado 2018

Quality of Life in Young Adults With Cerebral Palsy: A Longitudinal Analysis of the SPARCLE Study

por Vidart d'Egurbide Bagazgoïtia, Nicolas, Ehlinger, Virginie, Duffaut, Carine, Fauconnier, Jérôme, Schmidt-Schuchert, Silke, Thyen, Ute, Himmelmann, Kate, Marcelli, Marco, Arnaud, Catherine
Publicado 2021

Trajectories of Health-Related Quality of Life and HbA1c Values of Children and Adolescents With Diabetes Mellitus Type 1 Over 6 Months: A Longitudinal Observational Study

por Fischer, Kathrin I., Fischer, Felix H., Barthel, Dana, Otto, Christiane, Thyen, Ute, Klein, Marcus, Walter, Otto, Ravens-Sieberer, Ulrike, Rose, Matthias, Nolte, Sandra
Publicado 2020

Quality of life and mental health in emerging adults with cerebral palsy compared to the general population

por Schmidt, Silke, Markwart, Henriette, Rapp, Marion, Guyard, Audrey, Arnaud, Catherine, Fauconnier, Jérôme, Thyen, Ute, Hahm, Stefanie, Vidart d’Egurbide Bagazgoïtia, Nicolas, Muehlan, Holger
Publicado 2022

Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy

por Dickinson, Heather, Parkinson, Kathryn, McManus, Vicki, Arnaud, Catherine, Beckung, Eva, Fauconnier, Jérôme, Michelsen, Susan I, Parkes, Jackie, Schirripa, Giorgio, Thyen, Ute, Colver, Allan
Publicado 2006

Early Genital Surgery in Disorders/Differences of Sex Development: Patients’ Perspectives

por Bennecke, Elena, Bernstein, Stephanie, Lee, Peter, van de Grift, Tim C., Nordenskjöld, Agneta, Rapp, Marion, Simmonds, Margaret, Streuli, Jürg C., Thyen, Ute, Wiesemann, Claudia
Publicado 2021

Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol

por Arnaud, Catherine, Duffaut, Carine, Fauconnier, Jérôme, Schmidt, Silke, Himmelmann, Kate, Marcelli, Marco, Pennington, Lindsay, Alvarelhão, Joaquim, Cytera, Chirine, Rapp, Marion, Ehlinger, Virginie, Thyen, Ute
Publicado 2021

Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population

por Röhle, Robert, Gehrmann, Katharina, Szarras-Czapnik, Maria, Claahsen-van der Grinten, Hedi, Pienkowski, Catherine, Bouvattier, Claire, Cohen-Kettenis, Peggy, Nordenström, Anna, Thyen, Ute, Köhler, Birgit
Publicado 2017

Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study

por Fauconnier, Jérôme, Dickinson, Heather O, Beckung, Eva, Marcelli, Marco, McManus, Vicki, Michelsen, Susan I, Parkes, Jackie, Parkinson, Kathryn N, Thyen, Ute, Arnaud, Catherine, Colver, Allan
Publicado 2009

Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis

por Colver, Allan, Rapp, Marion, Eisemann, Nora, Ehlinger, Virginie, Thyen, Ute, Dickinson, Heather O, Parkes, Jackie, Parkinson, Kathryn, Nystrand, Malin, Fauconnier, Jérôme, Marcelli, Marco, Michelsen, Susan I, Arnaud, Catherine
Publicado 2015