Design and methods for understanding the state of cystic fibrosis care amid the COVID-19 pandemic()

por Dowd, Christopher, Van Citters, Aricca D., Dieni, Olivia, Willis, Anne, Powell, Leslie, Sabadosa, Kathryn A.
Publicado 2021

Evaluating barriers to and promoters of telehealth during the COVID-19 pandemic at U.S. cystic fibrosis programs()

por Gifford, Alex H., Ong, Thida, Dowd, Christopher, Van Citters, Aricca D., Scalia, Peter, Sabadosa, Kathryn A., Sawicki, Gregory S.
Publicado 2021

Patient and family experience of telehealth care delivery as part of the CF chronic care model early in the COVID-19 pandemic()

por Solomon, George M., Bailey, Julianna, Lawlor, James, Scalia, Peter, Sawicki, Gregory S., Dowd, Christopher, Sabadosa, Kathryn A., Van Citters, Aricca
Publicado 2021

Financial impacts of the COVID-19 pandemic on cystic fibrosis care: lessons for the future()

por Sawicki, Gregory S., Van Citters, Aricca D., Dieni, Olivia, Sabadosa, Kathryn A., Willis, Anne, Benitez, Debbie, Ong, Thida, Dasenbrook, Elliott C.
Publicado 2021

A qualitative study of design stakeholders’ views of developing and implementing a registry-based learning health system

por Dixon-Woods, Mary, Campbell, Anne, Chang, Trillium, Martin, Graham, Georgiadis, Alexandros, Heney, Veronica, Chew, Sarah, Van Citters, Aricca, Sabadosa, Kathryn A., Nelson, Eugene C.
Publicado 2020

Barriers and facilitators to implementing telehealth services during the COVID-19 pandemic: A qualitative analysis of interviews with cystic fibrosis care team members()

por Van Citters, Aricca D., Dieni, Olivia, Scalia, Peter, Dowd, Christopher, Sabadosa, Kathryn A., Fliege, Jill D., Jain, Manu, Miller, Robert W., Ren, Clement L.
Publicado 2021

Telehealth use in cystic fibrosis during COVID-19: Association with race, ethnicity, and socioeconomic factors()

por Albon, Dana, Van Citters, Aricca D., Ong, Thida, Dieni, Olivia, Dowd, Christopher, Willis, Anne, Sabadosa, Kathryn A., Scalia, Peter, Reno, Kimberly, Oates, Gabriela R., Schechter, Michael S.
Publicado 2021

Co-design of an Electronic Dashboard to Support the Coproduction of Care in Pediatric Rheumatic Disease: Human-Centered Design and Usability Testing

por Taxter, Alysha, Johnson, Lisa, Tabussi, Doreen, Kimura, Yukiko, Donaldson, Brittany, Lawson, Erica, Del Gaizo, Vincent, Vitelli, Daniela, Pinter, Corinne, Van Citters, Aricca, Nelson, Eugene, Lee, Tzielan
Publicado 2022

The Cystic Fibrosis Learning Network: A mixed methods evaluation of program goals, attributes, and impact

por Van Citters, Aricca D., Buus‐Frank, Madge E., King, Joel R., Seid, Michael, Holthoff, Megan M., Amin, Raouf S., Britto, Maria T., Nelson, Eugene C., Marshall, Bruce C., Sabadosa, Kathryn A.
Publicado 2022

Patient focused registries can improve health, care, and science

por Nelson, Eugene C, Dixon-Woods, Mary, Batalden, Paul B, Homa, Karen, Van Citters, Aricca D, Morgan, Tamara S, Eftimovska, Elena, Fisher, Elliott S, Ovretveit, John, Harrison, Wade, Lind, Cristin, Lindblad, Staffan
Publicado 2016

Eliciting patients’ healthcare goals and concerns: Do questions influence responses?

por Scalia, Peter, van Deen, Welmoed K, Engel, Jaclyn A, Stevens, Gabrielle, Van Citters, Aricca D, Holthoff, Megan M, Johnson, Lisa C, Kennedy, Alice M, Reddy, Swathi B, Nelson, Eugene C, Elwyn, Glyn
Publicado 2022

Prioritizing Measures That Matter Within a Person-Centered Oncology Learning Health System

por Van Citters, Aricca D, Kennedy, Alice M, Kirkland, Kathryn B, Dragnev, Konstantin H, Leach, Steven D, Buus-Frank, Madge E, Malcolm, Elissa F, Holthoff, Megan M, Holmes, Anne B, Nelson, Eugene C, Reeves, Susan A, Tosteson, Anna N A
Publicado 2022

Enhancing Care Partnerships Using a Rheumatology Dashboard: Bringing Together What Matters Most to Both Patients and Clinicians

por Van Citters, Aricca D., Taxter, Alysha J., Mathew, Stephanie D., Lawson, Erica, Eseddi, Joad, Del Gaizo, Vincent, Ahmad, Jabeen, Bajaj, Puneet, Courtnay, Stacy, Davila, Lesley, Donaldson, Brittany, Kimura, Yukiko, Lee, Tzielan, Mecchella, John N., Nelson, Eugene C., Pompa, Scott, Tabussi, Doreen, Johnson, Lisa C.
Publicado 2023

Patient-Reported Outcome Dashboards Within the Electronic Health Record to Support Shared Decision-making: Protocol for Co-design and Clinical Evaluation With Patients With Advance...

por Perry, Laura M, Morken, Victoria, Peipert, John D, Yanez, Betina, Garcia, Sofia F, Barnard, Cynthia, Hirschhorn, Lisa R, Linder, Jeffrey A, Jordan, Neil, Ackermann, Ronald T, Harris, Alexandra, Kircher, Sheetal, Mohindra, Nisha, Aggarwal, Vikram, Frazier, Rebecca, Coughlin, Ava, Bedjeti, Katy, Weitzel, Melissa, Nelson, Eugene C, Elwyn, Glyn, Van Citters, Aricca D, O'Connor, Mary, Cella, David
Publicado 2022