Forms, interactions, and responses to social support: A qualitative study of support and adherence to photoprotection amongst patients with Xeroderma Pigmentosum

por Walburn, Jessica, Anderson, Rebecca, Morgan, Myfanwy
Publicado 2019

A randomised controlled trial to investigate the effectiveness of sustained photoprotective behaviour in xeroderma pigmentosum after intervention

por Searle, Tamara, Walburn, Jessica, Norton, Sam
Publicado 2021

Challenges and proposed solutions for formative research to inform systematic intervention development in rare and unstudied conditions: The case example of Xeroderma Pigmentosum

por Sainsbury, Kirby, Walburn, Jessica, Araujo‐Soares, Vera, Weinman, John
Publicado 2017

The influence of perceived medical risks and psychosocial concerns on photoprotection behaviours among adults with xeroderma pigmentosum: a qualitative interview study in the UK

por Morgan, Myfanwy, Anderson, Rebecca, Walburn, Jessica, Weinman, John, Sarkany, Robert
Publicado 2019

Stress, Illness Perceptions, Behaviors, and Healing in Venous Leg Ulcers: Findings From a Prospective Observational Study

por Walburn, Jessica, Weinman, John, Norton, Sam, Hankins, Matthew, Dawe, Karen, Banjoko, Bolatito, Vedhara, Kavita
Publicado 2017

Improving photoprotection in adults with xeroderma pigmentosum: personalisation and tailoring in the ‘XPAND’ intervention

por Sainsbury, Kirby, Walburn, Jessica, Foster, Lesley, Morgan, Myfanwy, Sarkany, Robert, Weinman, John, Araujo-Soares, Vera
Publicado 2020

Why? What? How? Using an Intervention Mapping approach to develop a personalised intervention to improve adherence to photoprotection in patients with Xeroderma Pigmentosum

por Walburn, Jessica, Sainsbury, Kirby, Foster, Lesley, Weinman, John, Morgan, Myfanwy, Norton, Sam, Canfield, Martha, Chadwick, Paul, Sarkany, Bob, Araújo-Soares, Vera
Publicado 2020

Identifying the psychosocial predictors of ultraviolet exposure to the face in patients with xeroderma pigmentosum: a study of the behavioural factors affecting clinical outcomes i...

por Sarkany, Robert, Norton, Sam, Canfield, Martha, Morgan, Myfanwy, Foster, Lesley, Sainsbury, Kirby, Araujo-Soares, Vera, Wulf, Hans Christian, Weinman, John, Walburn, Jessica
Publicado 2022

Validation of the individualised neuromuscular quality of life for the USA with comparison of the impact of muscle disease on those living in USA versus UK

por Sadjadi, Reza, Vincent, Kelly A, Carr, Alison J, Walburn, Jessica, Brooks, Victoria L, Pandya, Shree, Kissel, John T, Jackson, Carlayne E, Rose, Michael R
Publicado 2011

Psychological correlates of adherence to photoprotection in a rare disease: International survey of people with Xeroderma Pigmentosum

por Walburn, Jessica, Canfield, Martha, Norton, Sam, Sainsbury, Kirby, Araújo‐Soares, Vera, Foster, Lesley, Berneburg, Mark, Sarasin, Alain, Morrison‐Bowen, Natalie, Sniehotta, Falko F., Sarkany, Robert, Weinman, John
Publicado 2019

An investigation of the predictors of photoprotection and UVR dose to the face in patients with XP: a protocol using observational mixed methods

por Walburn, Jessica, Sarkany, Robert, Norton, Sam, Foster, Lesley, Morgan, Myfanwy, Sainsbury, Kirby, Araújo-Soares, Vera, Anderson, Rebecca, Garrood, Isabel, Heydenreich, Jakob, Sniehotta, Falko F, Vieira, Rute, Wulf, Hans Christian, Weinman, John
Publicado 2017

Evaluation of a personalised adherence intervention to improve photoprotection in adults with Xeroderma Pigmentosum (XP): protocol for the trial of XPAND

por Walburn, Jessica, Norton, Sam, Sarkany, Robert, Sainsbury, Kirby, Araújo-Soares, Vera, Morgan, Myfanwy, Canfield, Martha, Foster, Lesley, Heydenreich, Jakob, McCrone, Paul, Mander, Adrian, Sniehotta, Falko F, Wulf, Hans Christian, Weinman, John
Publicado 2019