Evaluating the National Institutes of Health's Sex as a Biological Variable Policy: Conflicting Accounts from the Front Lines of Animal Research

por Waltz, Margaret, Fisher, Jill A., Lyerly, Anne Drapkin, Walker, Rebecca L.
Publicado 2021

Biomedical Researchers' Perceptions of the NIH's Sex as a Biological Variable Policy for Animal Research: Results from a U.S. National Survey

por Waltz, Margaret, Saylor, Katherine W., Fisher, Jill A., Walker, Rebecca L.
Publicado 2021

Professionalism and Ethics: A Standardized Patient Observed Standardized Clinical Examination to Assess ACGME Pediatric Professionalism Milestones

por Waltz, Margaret, Davis, Arlene, Cadigan, R. Jean, Jaswaney, Rohit, Smith, Melissa, Joyner, Benny
Publicado 2020

Age and Perceived Risks and Benefits of Preventive Genomic Screening

por Waltz, Margaret, Cadigan, R. Jean, Prince, Anya E. R., Skinner, Debra, Henderson, Gail E.
Publicado 2017

The impact of COVID-19 on pediatric diagnostic odysseys

por Waltz, Margaret, Bensen, Jeannette, Foreman, Ann Katherine M., Grant, Tracey, Lich, Kristen Hassmiller, Mollison, Lonna, Staley, Brooke, Cadigan, R. Jean
Publicado 2021

Assessing the implications of positive genomic screening results

por Waltz, Margaret, Meagher, Karen M, Henderson, Gail E, Goddard, Katrina AB, Muessig, Kristin, Berg, Jonathan S, Weck, Karen E, Cadigan, R Jean
Publicado 2020

Genomic Knowledge in the Context of Diagnostic Exome Sequencing: Changes over Time, Persistent Subgroup Differences, and Associations with Psychological Sequencing Outcomes

por Rini, Christine, Henderson, Gail E., Evans, James P., Berg, Jonathan S., Foreman, Ann Katherine M., Griesemer, Ida, Waltz, Margaret, O’Daniel, Julianne M., Roche, Myra I.
Publicado 2019

Development and validation of a measure of comprehension of genomic screening—negative results (CoG-NR)

por Henderson, Gail E., Ewing, Molly, Kuczynski, Kristine J., Cadigan, R. Jean, Waltz, Margaret, Butterfield, Rita M., Rini, Christine, Weck, Karen, Berg, Jonathan S., Edwards, Teresa P.
Publicado 2020

Returning negative results to individuals in a genomic screening program: Lessons learned

por Butterfield, Rita M., Evans, James P., Rini, Christine, Kuczynski, Kristine J., Waltz, Margaret, Cadigan, R. Jean, Goddard, Katrina A.B., Muessig, Kristin R., Henderson, Gail E.
Publicado 2018

Stem Cell Transplant Experiences Among Hispanic/Latinx Patients: A Qualitative Analysis

por Yanez, Betina, Taub, Chloe J., Waltz, Margaret, Diaz, Alma, Buitrago, Diana, Bovbjerg, Katrin, Chicaiza, Anthony, Thompson, Rebecca, Rowley, Scott, Moreira, Jonathan, Graves, Kristi D., Rini, Christine
Publicado 2022

Going off antiretroviral treatment in a closely monitored HIV “cure” trial: longitudinal assessments of acutely diagnosed trial participants and decliners

por Henderson, Gail E, Waltz, Margaret, Meagher, Karen, Cadigan, R Jean, Jupimai, Thidarat, Isaacson, Sinéad, Ormsby, Nuchanart Q, Colby, Donn J, Kroon, Eugène, Phanuphak, Nittaya, Ananworanich, Jintanat, Peay, Holly L
Publicado 2019

Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing p...

por Bovbjerg, Katrin, Graves, Kristi, Waltz, Margaret, Farrell, David, Yanez, Betina, Chicaiza, Anthony, Omar, Rahma, Thompson, Rebecca, Kop, Mariska, Van Denburg, Alyssa N., Lorch, Danielle, Rowley, Scott D., Rini, Christine
Publicado 2022

Conducting clinical genomics research during the COVID‐19 pandemic: Lessons learned from the CSER consortium experience

por Kraft, Stephanie A., Russell, Heidi, Bensen, Jeannette T., Bonini, Katherine E., Robinson, Jill O., Sahin‐Hodoglugil, Nuriye, Renna, Kathleen, Hindorff, Lucia A., Kaufman, Dave, Horowitz, Carol R., Waltz, Margaret, Zepp, Jamilyn M., Knight, Sara J.
Publicado 2022

Optimizing use of written peer support as a supportive resource in cancer: Focus group insights

por Rini, Christine, Waltz, Margaret, Bovbjerg, Katrin, Farrell, David, Yanez, Betina, Chicaiza, Anthony, Hartstein, Madison L., Omar, Rahma, Thompson, Rebecca, Rowley, Scott D., Stanton, Annette L., Valdimarsdottir, Heiddis, Austin, Jane, Van Denburg, Alyssa N., Graves, Kristi D.
Publicado 2022

Engaging community stakeholders in research on best practices for clinical genomic sequencing

por Griesemer, Ida, Staley, Brooke S, Lightfoot, Alexandra F, Bain, Lizzy, Byrd, Derrick, Conway, Carol, Grant, Tracey L, Leach, Barbara, Milko, Laura V, Mollison, Lonna, Porter, Nadiah, Reid, Sharron, Smith, Gerri, Waltz, Margaret, Berg, Jonathan S, Rini, Christine, O’Daniel, Julianne M
Publicado 2020

Evaluating the clinical utility of early exome sequencing in diverse pediatric outpatient populations in the North Carolina Clinical Genomic Evaluation of Next-generation Exome Seq...

por Staley, Brooke S., Milko, Laura V., Waltz, Margaret, Griesemer, Ida, Mollison, Lonna, Grant, Tracey L., Farnan, Laura, Roche, Myra, Navas, Angelo, Lightfoot, Alexandra, Foreman, Ann Katherine M., O’Daniel, Julianne M., O’Neill, Suzanne C., Lin, Feng-Chang, Roman, Tamara S., Brandt, Alicia, Powell, Bradford C., Rini, Christine, Berg, Jonathan S., Bensen, Jeannette T.
Publicado 2021

Lessons learned about harmonizing survey measures for the CSER consortium

por Goddard, Katrina A.B., Angelo, Frank A.N., Ackerman, Sara L., Berg, Jonathan S., Biesecker, Barbara B., Danila, Maria I., East, Kelly M., Hindorff, Lucia A., Horowitz, Carol R., Hunter, Jessica Ezzell, Joseph, Galen, Knight, Sara J., McGuire, Amy, Muessig, Kristin R., Ou, Jeffrey, Outram, Simon, Rahn, Elizabeth J., Ramos, Michelle A., Rini, Christine, Robinson, Jill O., Smith, Hadley Stevens, Waltz, Margaret, Lee, Sandra Soo-Jin
Publicado 2020

Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium

por Gutierrez, Amanda M., Robinson, Jill O., Outram, Simon M., Smith, Hadley S., Kraft, Stephanie A., Donohue, Katherine E., Biesecker, Barbara B., Brothers, Kyle B., Chen, Flavia, Hailu, Benyam, Hindorff, Lucia A., Hoban, Hannah, Hsu, Rebecca L., Knight, Sara J., Koenig, Barbara A., Lewis, Katie L., Lich, Kristen Hassmiller, O’Daniel, Julianne M., Okuyama, Sonia, Tomlinson, Gail E., Waltz, Margaret, Wilfond, Benjamin S., Ackerman, Sara L., Majumder, Mary A.
Publicado 2021