Feasibility of electronic patient-reported outcome monitoring and self-management program in aplastic anemia and paroxysmal nocturnal hemoglobinuria—a pilot study (ePRO-AA-PNH)

por Bänziger, Silas, Weisshaar, Kimmo, Arokoski, Reetta, Gerull, Sabine, Halter, Jörg, Rovó, Alicia, Bargetzi, Mario, Goede, Jeroen S., Senft, Yuliya, Valenta, Sabine, Passweg, Jakob R., Drexler, Beatrice
Publicado 2022

Development of a patient-reported outcome questionnaire for aplastic anemia and paroxysmal nocturnal hemoglobinuria (PRO-AA/PNH)

por Weisshaar, Kimmo, Ewald, Hannah, Halter, Jörg, Gerull, Sabine, Schönfeld, Sandra, Senft, Yuliya, Martinez, Maria, Leuppi-Taegtmeyer, Anne, Khanna, Nina, Maier, Birgit, Risitano, Antonio, Peffault de Latour, Regis, Tichelli, Andre, Passweg, Jakob, Drexler, Beatrice
Publicado 2020