Maßnahmen für einen optimalen Zugang von Kindern mit seltenen Erkrankungen und ihrer Familien zur psychosozialen Versorgung

por Witt, Stefanie, Kristensen, Kaja, Wiegand-Grefe, Silke, Quitmann, Julia
Publicado 2023

Quality of Life and Mental Health in Mothers and Fathers Caring for Children and Adolescents with Rare Diseases Requiring Long-Term Mechanical Ventilation

por Boettcher, Johannes, Denecke, Jonas, Barkmann, Claus, Wiegand-Grefe, Silke
Publicado 2020

Being the Pillar for Children with Rare Diseases—A Systematic Review on Parental Quality of Life

por Boettcher, Johannes, Boettcher, Michael, Wiegand-Grefe, Silke, Zapf, Holger
Publicado 2021

Health-related quality of life of children and adolescents with mental disorders

por Weitkamp, Katharina, Daniels, Judith K, Romer, Georg, Wiegand-Grefe, Silke
Publicado 2013

Family Functioning and Psychological Health of Children with Mentally Ill Parents

por Wiegand-Grefe, Silke, Sell, Marlit, Filter, Bonnie, Plass-Christl, Angela
Publicado 2019

Living with a rare disease - experiences and needs in pediatric patients and their parents

por Witt, Stefanie, Schuett, Katharina, Wiegand-Grefe, Silke, Boettcher, Johannes, Quitmann, Julia
Publicado 2023

German Screen for Child Anxiety Related Emotional Disorders (SCARED): Reliability, Validity, and Cross-Informant Agreement in a Clinical Sample

por Weitkamp, Katharina, Romer, Georg, Rosenthal, Sandra, Wiegand-Grefe, Silke, Daniels, Judith
Publicado 2010

Bifokale Perspektive in der Arbeit mit Familien mit psychisch erkrankten Eltern: Training zur Verbesserung von Einstellungen, Wissen und Fertigkeiten für medizinische Fachkräfte

por Taubner, Svenja, Kasper, Lea, Hauschild, Sophie, Wiegand-Grefe, Silke, Georg, Anna
Publicado 2021

The psychosocial situation of families caring for children with rare diseases during the COVID-19 pandemic: results of a cross-sectional online survey

por Rihm, Lydia, Dreier, Mareike, Rezvani, Farhad, Wiegand-Grefe, Silke, Dirmaier, Jörg
Publicado 2022

The impact of long-term ventilator-use on health-related quality of life and the mental health of children with neuromuscular diseases and their families: need for a revised perspe...

por Johannsen, Jessika, Fuhrmann, Lena, Grolle, Benjamin, Morgenstern, Lydia, Wiegand-Grefe, Silke, Denecke, Jonas
Publicado 2020

Children of Parents with a Mental Illness: Predictors of Health-Related Quality of Life and Determinants of Child–Parent Agreement

por Radicke, Alina, Barkmann, Claus, Adema, Bonnie, Daubmann, Anne, Wegscheider, Karl, Wiegand-Grefe, Silke
Publicado 2021

Perceived mental health in parents of children with rare congenital surgical diseases: a double ABCX model considering gender

por Boettcher, Johannes, Zapf, Holger, Fuerboeter, Mareike, Nazarian, Rojin, Reinshagen, Konrad, Wiegand-Grefe, Silke, Boettcher, Michael
Publicado 2021

A Systematic Review of Parent–Child Communication Measures: Instruments and Their Psychometric Properties

por Zapf, Holger, Boettcher, Johannes, Haukeland, Yngvild, Orm, Stian, Coslar, Sarah, Wiegand-Grefe, Silke, Fjermestad, Krister
Publicado 2022

Quality of life and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic

por Fuerboeter, Mareike, Boettcher, Johannes, Barkmann, Claus, Zapf, Holger, Nazarian, Rojin, Wiegand-Grefe, Silke, Reinshagen, Konrad, Boettcher, Michael
Publicado 2021

Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

por Witt, Stefanie, Kristensen, Kaja, Wiegand-Grefe, Silke, Boettcher, Johannes, Bloemeke, Janika, Wingartz, Christina, Bullinger, Monika, Quitmann, Julia
Publicado 2021

Clinical- and Cost Effectiveness of a Guided Internet-Based Intervention for Children (12–18 Years) of Parents With Mental Disorders (iCHIMPS): Study Protocol of a Multicentered Cl...

por Dülsen, Patrick, Barck, Katja, Daubmann, Anne, Höller, Alexandra, Zeidler, Jan, Kilian, Reinhold, Wiegand-Grefe, Silke, Baumeister, Harald
Publicado 2022

Families with Mentally Ill Parents and Their Partners: Overlaps in Psychiatric Symptoms and Symptom Coping

por Wiegand-Grefe, Silke, Warkentin, Hannah, Adema, Bonnie, Daubmann, Anne, Kilian, Reinhold, Winter, Sibylle M., Lambert, Martin, Wegscheider, Karl, Busmann, Mareike
Publicado 2023

Costs of health and social services use in children of parents with mental illness

por Waldmann, Tamara, Stiawa, Maja, Dinc, Ümügülsüm, Saglam, Gülsah, Busmann, Mareike, Daubmann, Anne, Adema, Bonnie, Wegscheider, Karl, Wiegand-Grefe, Silke, Kilian, Reinhold
Publicado 2021

Family Functioning in Families Affected by Parental Mental Illness: Parent, Child, and Clinician Ratings

por Sell, Marlit, Daubmann, Anne, Zapf, Holger, Adema, Bonnie, Busmann, Mareike, Stiawa, Maja, Winter, Sibylle M., Lambert, Martin, Wegscheider, Karl, Wiegand-Grefe, Silke
Publicado 2021

Risk and Protective Factors Associated With Health-Related Quality of Life of Parents With Mental Illness

por Radicke, Alina, Sell, Marlit, Adema, Bonnie, Daubmann, Anne, Kilian, Reinhold, Busmann, Mareike, Winter, Sibylle M., Lambert, Martin, Wegscheider, Karl, Wiegand-Grefe, Silke
Publicado 2021