It’s complicated: criteria for policy decisions for the clinical integration of genome-scale sequencing for reproductive decision making

por Wilfond, Benjamin S, Goddard, Katrina AB
Publicado 2015

The evolving landscape of expanded carrier screening: challenges and opportunities

por Kraft, Stephanie A., Duenas, Devan, Wilfond, Benjamin S., Goddard, Katrina A. B.
Publicado 2018

Patient perspectives on how to demonstrate respect: Implications for clinicians and healthcare organizations

por Bridges, Celina, Duenas, Devan M., Lewis, Hannah, Anderson, Katherine, Opel, Douglas J., Wilfond, Benjamin S., Kraft, Stephanie A.
Publicado 2021

“I Don’t Want to be Henrietta Lacks”: Diverse Patient Perspectives on Donating Biospecimens for Precision Medicine Research

por Lee, Sandra S.-J., Cho, Mildred K., Kraft, Stephanie A., Varsava, Nina, Gillespie, Katie, Ormond, Kelly E., Wilfond, Benjamin S., Magnus, David
Publicado 2018

Assessing Parent Decisions About Child Participation in a Behavioral Health Intervention Study and Utility of Informed Consent Forms

por Kraft, Stephanie A., Porter, Kathryn M., Duenas, Devan M., Sullivan, Erin, Rowland, Maya, Saelens, Brian E., Wilfond, Benjamin S., Shah, Seema K.
Publicado 2020

Ethical, legal and social implications of human genome studies in radiation research: a workshop report for studies on atomic bomb survivors at the Radiation Effects Research Found...

por Noda, Asao, Kato, Kazuto, Tamura, Chieko, Biesecker, Leslie G, Imaizumi, Misa, Inoue, Yusuke, Henderson, Gail E, Wilfond, Benjamin, Muto, Kaori, Naito, Mariko, Kayukawa, Junji
Publicado 2021

Identifying patients with Lynch syndrome using a universal tumor screening program in an integrated healthcare system

por Crain, Philip R., Zepp, Jamilyn M., Gille, Sara, Jenkins, Lindsay, Kauffman, Tia L., Shuster, Elizabeth, Goddard, Katrina A.B., Wilfond, Benjamin S., Hunter, Jessica Ezzell
Publicado 2022

Hyperhydration to Improve Kidney Outcomes in Children with Shiga Toxin-Producing E. coli Infection: a multinational embedded cluster crossover randomized trial (the HIKO STEC trial...

por Freedman, Stephen B., Schnadower, David, Estes, Myka, Casper, T. Charles, Goldstein, Stuart L., Grisaru, Silviu, Pavia, Andrew T., Wilfond, Benjamin S., Metheney, Melissa, Kimball, Kadyn, Tarr, Phillip I.
Publicado 2023

Informed consent: Old and new challenges in the context of the COVID-19 pandemic

por Rothwell, Erin, Brassil, Donna, Barton-Baxter, Marietta, Brownley, Kimberly A., Dickert, Neal W., Ford, Daniel E., Kraft, Stephanie A., McCormick, Jennifer B., Wilfond, Benjamin S.
Publicado 2021

Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation

por Boss, Renee D., Vo, Holly H., Jabre, Nicholas A., Shepard, Jennifer, Mercer, Amanda, McDermott, Anne, Lanier, Chisa L., Ding, Yuanyuan, Wilfond, Benjamin S., Henderson, Carrie M.
Publicado 2023

The NextGen Study: patient motivation for participation in genome sequencing for carrier status

por Kauffman, Tia L., Irving, Stephanie A., Leo, Michael C., Gilmore, Marian J., Himes, Patricia, McMullen, Carmit K., Morris, Elissa, Schneider, Jennifer, Wilfond, Benjamin S., Goddard, Katrina A. B.
Publicado 2017

Assessment of willingness to pay for expanded carrier screening among women and couples undergoing preconception carrier screening

por Clarke, Elizabeth V., Schneider, Jennifer L., Lynch, Frances, Kauffman, Tia L., Leo, Michael C., Rosales, Ana G., Dickerson, John F., Shuster, Elizabeth, Wilfond, Benjamin S., Goddard, Katrina A. B.
Publicado 2018

Rethinking the “Open Future” Argument against Predictive Genetic Testing of Children

por Garrett, Jeremy R., Lantos, John D., Biesecker, Leslie G., Childerhose, Janet E., Chung, Wendy K., Holm, Ingrid A., Koenig, Barbara A., McEwen, Jean E., Wilfond, Benjamin S., Brothers, Kyle
Publicado 2019

“Is It Worth Knowing?” Focus Group Participants’ Perceived Utility of Genomic Preconception Carrier Screening

por Schneider, Jennifer L., Goddard, Katrina A. B., Davis, James, Wilfond, Benjamin, Kauffman, Tia L., Reiss, Jacob A., Gilmore, Marian, Himes, Patricia, Lynch, Frances L., Leo, Michael C., McMullen, Carmit
Publicado 2015

Family-Assisted Severity of Illness Monitoring for Hospitalized Children in Low-Resource Settings—A Two-Arm Interventional Feasibility Study

por von Saint Andre-von Arnim, Amelie O., Kumar, Rashmi K., Clark, Jonna D., Wilfond, Benjamin S., Nguyen, Quynh-Uyen P., Mutonga, Daniel M., Zimmerman, Jerry J., Oron, Assaf P., Walson, Judd L.
Publicado 2022

Design of a randomized controlled trial for genomic carrier screening in healthy patients seeking preconception genetic testing

por Kauffman, Tia L., Wilfond, Benjamin S., Jarvik, Gail P., Leo, Michael C., Lynch, Frances L., Reiss, Jacob A., Richards, C. Sue, McMullen, Carmit, Nickerson, Deborah, Dorschner, Michael O., Goddard, Katrina A.B.
Publicado 2016

Research recruitment through the patient portal: perspectives of community focus groups in Seattle and Atlanta

por Porter, Kathryn M, Kraft, Stephanie A, Speight, Candace D, Duenas, Devan M, Niyibizi, Nyiramugisha K, Mitchell, Andrea, O’Connor, M Rebecca, Gregor, Charles, Liljenquist, Kendra, Shah, Seema K, Wilfond, Benjamin S, Dickert, Neal W
Publicado 2023

Refining a Multifaceted Model of Perceived Utility of Genomic Sequencing Results

por Duenas, Devan M., Riddle, Leslie, Guerra, Claudia, Caruncho, Mikaella, Lewis, Hannah, Porter, Kathryn M., Kraft, Stephanie A., Anderson, Katherine P., Biesecker, Barbara, Gilmore, Marian J., Zepp, Jamilyn M., Leo, Michael C., Wilfond, Benjamin S., Joseph, Galen
Publicado 2023

Ethical Considerations in Ever-Expanding Utilization of ECLS: A Research Agenda

por Clark, Jonna D., Baden, Harris P., Berkman, Emily R., Bourget, Erica, Brogan, Thomas V., Di Gennaro, Jane L., Doorenbos, Ardith Z., McMullan, D. Michael, Roberts, Joan S., Turnbull, Jessica M., Wilfond, Benjamin S., Lewis-Newby, Mithya
Publicado 2022

Evaluating cancer genetic services in a safety net system: overcoming barriers for a lasting impact beyond the CHARM research project

por Okuyama, Sonia, White, Larissa L., Anderson, Katherine P., Medina, Elizabeth, Deutsch, Sonia, Ransom, Chelese, Jackson, Paige, Kauffman, Tia L., Mittendorf, Kathleen F., Leo, Michael C., Bulkley, Joanna E., Wilfond, Benjamin S., Goddard, Katrina AB, Feigelson, Heather Spencer
Publicado 2023