Evaluation of a Case Management to Support Families With Children Diagnosed With Spinal Muscular Atrophy—Protocol of a Controlled Mixed-Methods Study

por Willems, Jana, Farin-Glattacker, Erik, Langer, Thorsten
Publicado 2021

Barriers and facilitating factors of care coordination for children with spinal muscular atrophy type I and II from the caregivers' perspective: an interview study

por Willems, Jana, Bablok, Isabella, Farin-Glattacker, Erik, Langer, Thorsten
Publicado 2023

The German pediatric integrated care survey (PICS-D): Translation, adaptation, and psychometric testing

por Willems, Jana, Bablok, Isabella, Sehlbrede, Matthias, Farin-Glattacker, Erik, Langer, Thorsten
Publicado 2022

Evaluating case management for caregivers of children with spinal muscular atrophy type I and II—an exploratory, controlled, mixed-methods trial

por Willems, Jana, Pechmann, Astrid, Wider, Sabine, Ambs, Rita, Meyer, Sylvia A. N., Cascante, Isabel, Sproß, Joachim, Mund, Annette, Farin-Glattacker, Erik, Langer, Thorsten
Publicado 2023