Building the blueprint: Formulating a community‐generated national plan for future research in inherited bleeding disorders

por Valentino, Leonard A., Witkop, Michelle L., Santaella, Maria E., DiMichele, Donna, Recht, Michael
Publicado 2022

Racial Differences in Chronic Pain and Quality of Life among Adolescents and Young Adults with Moderate or Severe Hemophilia

por McLaughlin, John M., Lambing, Angela, Witkop, Michelle L., Anderson, Terry L., Munn, James, Tortella, Bartholomew
Publicado 2015

Associations of quality of life, pain, and self-reported arthritis with age, employment, bleed rate, and utilization of hemophilia treatment center and health care provider service...

por Forsyth, Angela L, Witkop, Michelle, Lambing, Angela, Garrido, Cesar, Dunn, Spencer, Cooper, David L, Nugent, Diane J
Publicado 2015

Predictors of quality of life among adolescents and young adults with a bleeding disorder

por McLaughlin, John M., Munn, James E., Anderson, Terry L., Lambing, Angela, Tortella, Bartholomew, Witkop, Michelle L.
Publicado 2017

Interrelationship between depression, anxiety, pain, and treatment adherence in hemophilia: results from a US cross-sectional survey

por Witkop, Michelle L, Lambing, Angela, Nichols, Cynthia D, Munn, James E, Anderson, Terry L, Tortella, Bartholomew J
Publicado 2019

Correlations between patient-reported outcomes and self-reported characteristics in adults with hemophilia B and caregivers of children with hemophilia B: analysis of the B-HERO-S...

por Buckner, Tyler W, Sidonio Jr, Robert, Witkop, Michelle, Guelcher, Christine, Cutter, Susan, Iyer, Neeraj N, Cooper, David L
Publicado 2019

Evidence of a disability paradox in patient‐reported outcomes in haemophilia

por O’Hara, Jamie, Martin, Antony P., Nugent, Diane, Witkop, Michelle, Buckner, Tyler W., Skinner, Mark W., O’Mahony, Brian, Mulhern, Brendan, Morgan, George, Li, Nanxin, Sawyer, Eileen K.
Publicado 2021

Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment

por Witkop, Michelle, Morgan, George, O'Hara, Jamie, Recht, Michael, Buckner, Tyler W., Nugent, Diane, Curtis, Randall, O'Mahony, Brian, Skinner, Mark W., Mulhern, Brendan, Cawson, Matthew, Ali, Talaha M., Sawyer, Eileen K., Li, Nanxin
Publicado 2021

Understanding the Pain Management Landscape Within the US Bleeding Disorder Community: A Multi-Center Survey

por Witkop, Michelle, Santaella, Maria, Nichols, Cynthia D, Lambing, Angela Y, Baumann, Kimberly, Curtis, Randall G, Humphrey, Christi, Humphries, Thomas J, Newman, Jennifer, Durben, Nancy, Fritz, Rhonda, Mauer, Kimberly, Thibodeaux, Constance B, Wheat, Emily, Buckner, Tyler
Publicado 2021

Quality of life in a large multinational haemophilia B cohort (The B‐Natural study) – Unmet needs remain

por Berntorp, Erik, LeBeau, Petra, Ragni, Margaret V., Borhany, Munira, Abajas, Yasmina L., Tarantino, Michael D., Holstein, Katharina, Croteau, Stacy E., Liesner, Raina, Tarango, Cristina, Carvalho, Manuela, McGuinn, Catherine, Funding, Eva, Kempton, Christine L., Bidlingmaier, Christoph, Cohen, Alice, Oldenburg, Johannes, Kearney, Susan, Knoll, Christine, Kuriakose, Philip, Acharya, Suchitra, Reiss, Ulrike M., Kulkarni, Roshni, Witkop, Michelle, Lethagen, Stefan, Krouse, Rebecca, Shapiro, Amy D., Astermark, Jan
Publicado 2022