Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study

por Springer, Jason Michael, Kermani, Tanaz A, Sreih, Antoine, Shaw, Dianne G, Young, Kalen, Burroughs, Cristina M, Merkel, Peter A
Publicado 2020

Diagnostic delays in vasculitis and factors associated with time to diagnosis

por Sreih, Antoine G., Cronin, Keri, Shaw, Dianne G., Young, Kalen, Burroughs, Cristina, Kullman, Joyce, Machireddy, Kirthi, McAlear, Carol A., Merkel, Peter A.
Publicado 2021

Patient involvement in medical research: what patients and physicians learn from each other

por Young, Kalen, Kaminstein, Dana, Olivos, Ana, Burroughs, Cristina, Castillo-Lee, Celeste, Kullman, Joyce, McAlear, Carol, Shaw, Dianne G., Sreih, Antoine, Casey, George, Merkel, Peter A.
Publicado 2019

Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future Directions

por Nowell, W. Benjamin, Merkel, Peter A., McBurney, Robert N., Young, Kalen, Venkatachalam, Shilpa, Shaw, Dianne G., Dobes, Angela, Cerciello, Emily, Kolaczkowski, Laura, Curtis, Jeffrey R., Kappelman, Michael D.
Publicado 2021

Harnessing health plan enrollee data to boost membership in patient-powered research networks

por Chen, Xiaoxue, Agiro, Abiy, Nowell, W. Benjamin, Loud, Sara, McBurney, Robert, Young, Kalen, Sutphen, Rebecca, Bourquardez Clark, Elizabeth, Burroughs, Cristina M., Curtis, Jeffrey R., Sreih, Antoine G., Merkel, Peter A., Haynes, Kevin
Publicado 2020

Effects of the COVID‐19 Pandemic on Patients Living With Vasculitis

por Banerjee, Shubhasree, George, Michael, Young, Kalen, Venkatachalam, Shilpa, Gordon, Jennifer, Burroughs, Cristina, Curtis, David, Ferrada, Marcela, Gavigan, Kelly, Grayson, Peter C., Kullman, Joyce, Danila, Maria I., Curtis, Jeffrey R., Shaw, Dianne G., Benjamin Nowell, W., Merkel, Peter A.
Publicado 2020

Self-Reported Data and Physician-Reported Data in Patients With Eosinophilic Granulomatosis With Polyangiitis: Comparative Analysis

por Doubelt, Irena, Springer, Jason M, Kermani, Tanaz A, Sreih, Antoine G, Burroughs, Cristina, Cuthbertson, David, Carette, Simon, Khalidi, Nader A, Koening, Curry L, Langford, Carol, McAlear, Carol A, Moreland, Larry W, Monach, Paul A, Shaw, Dianne G, Seo, Philip, Specks, Ulrich, Warrington, Kenneth J, Young, Kalen, Merkel, Peter A, Pagnoux, Christian
Publicado 2022