Multistakeholder Engagement in PCORnet, the National Patient-Centered Clinical Research Network

por Selby, Joe V., Grossman, Claudia, Zirkle, Maryan, Barbash, Shayna
Publicado 2018

Ethical issues related to clinical research and rare diseases: 15th Gordon L. Snider Critical Issues Workshop, April 1, 2016, Bethesda, Maryland

por Coors, Marilyn, Bauer, Larry, Edwards, Kelly, Erickson, Karen, Goldenberg, Aaron, Goodale, John, Goodman, Kenneth, Grady, Christine, Mannino, David, Wanner, Adam, Wilson, Todd, Yarborough, Mark, Zirkle, Maryan
Publicado 2017

Establishing a framework for privacy-preserving record linkage among electronic health record and administrative claims databases within PCORnet(®), the National Patient-Centered C...

por Kiernan, Daniel, Carton, Thomas, Toh, Sengwee, Phua, Jasmin, Zirkle, Maryan, Louzao, Darcy, Haynes, Kevin, Weiner, Mark, Angulo, Francisco, Bailey, Charles, Bian, Jiang, Fort, Daniel, Grannis, Shaun, Krishnamurthy, Ashok Kumar, Nair, Vinit, Rivera, Pedro, Silverstein, Jonathan, Marsolo, Keith
Publicado 2022

Assessing the impact of privacy-preserving record linkage on record overlap and patient demographic and clinical characteristics in PCORnet(®), the National Patient-Centered Clinic...

por Marsolo, Keith, Kiernan, Daniel, Toh, Sengwee, Phua, Jasmin, Louzao, Darcy, Haynes, Kevin, Weiner, Mark, Angulo, Francisco, Bailey, Charles, Bian, Jiang, Fort, Daniel, Grannis, Shaun, Krishnamurthy, Ashok Kumar, Nair, Vinit, Rivera, Pedro, Silverstein, Jonathan, Zirkle, Maryan, Carton, Thomas
Publicado 2022