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Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia
The integration of pediatric palliative care (PPC) should become a standard of care for all children with life-limiting and life-threatening illnesses. There are many barriers and misperceptions in pediatrics which hinder the early implementation of PPC. The aim of the study was to design starting p...
Autores principales: | , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Berlin Heidelberg
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10023644/ https://www.ncbi.nlm.nih.gov/pubmed/36680577 http://dx.doi.org/10.1007/s00431-023-04806-7 |
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author | Meglič, Jakob Lisec, Ajda Lepej, Dušanka Loboda, Tanja Bertok, Sara Lešnik Musek, Petra Kreft Hausmeister, Ivana Oštir, Majda Ponjević, Tehvida Meglič, Anamarija |
author_facet | Meglič, Jakob Lisec, Ajda Lepej, Dušanka Loboda, Tanja Bertok, Sara Lešnik Musek, Petra Kreft Hausmeister, Ivana Oštir, Majda Ponjević, Tehvida Meglič, Anamarija |
author_sort | Meglič, Jakob |
collection | PubMed |
description | The integration of pediatric palliative care (PPC) should become a standard of care for all children with life-limiting and life-threatening illnesses. There are many barriers and misperceptions in pediatrics which hinder the early implementation of PPC. The aim of the study was to design starting points for the establishment of accessible PPC with early involvement of patients in a tertiary-level children’s hospital. An intervention, presentation, and discussion on PPC were offered by the hospital PPC team to all employees in the hospital. A total of 237 participants (physicians 30.4%, nurses 49.4%, psychologists 8.4%, and others) completed a questionnaire before and after the intervention. The personnel’s knowledge, self-assessment of their ability to perform PPC, attitude to participate in PPC, and their awareness and understanding of the need for PPC were evaluated. The results were analyzed using Pandas and SciPy libraries in Python. The knowledge, awareness, and attitude of the physicians, nurses, and other professionals improved significantly after the intervention. However, the self-assessment of their ability to perform PPC did not increase. Previous experience with the death of a patient has proven to be a stimulus for self-initiative in acquiring knowledge in PPC and was linked with a better attitude and higher awareness of the need for PPC. Conclusions: More education and practical work tailored to the different professional profiles are needed, with adjustments for specific subspecialist areas, especially where patients could be included in early PPC. Although additional studies are needed, we identified the main directions for the further implementation of PPC in clinical practice in our setting. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s00431-023-04806-7. |
format | Online Article Text |
id | pubmed-10023644 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Springer Berlin Heidelberg |
record_format | MEDLINE/PubMed |
spelling | pubmed-100236442023-03-19 Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia Meglič, Jakob Lisec, Ajda Lepej, Dušanka Loboda, Tanja Bertok, Sara Lešnik Musek, Petra Kreft Hausmeister, Ivana Oštir, Majda Ponjević, Tehvida Meglič, Anamarija Eur J Pediatr Research The integration of pediatric palliative care (PPC) should become a standard of care for all children with life-limiting and life-threatening illnesses. There are many barriers and misperceptions in pediatrics which hinder the early implementation of PPC. The aim of the study was to design starting points for the establishment of accessible PPC with early involvement of patients in a tertiary-level children’s hospital. An intervention, presentation, and discussion on PPC were offered by the hospital PPC team to all employees in the hospital. A total of 237 participants (physicians 30.4%, nurses 49.4%, psychologists 8.4%, and others) completed a questionnaire before and after the intervention. The personnel’s knowledge, self-assessment of their ability to perform PPC, attitude to participate in PPC, and their awareness and understanding of the need for PPC were evaluated. The results were analyzed using Pandas and SciPy libraries in Python. The knowledge, awareness, and attitude of the physicians, nurses, and other professionals improved significantly after the intervention. However, the self-assessment of their ability to perform PPC did not increase. Previous experience with the death of a patient has proven to be a stimulus for self-initiative in acquiring knowledge in PPC and was linked with a better attitude and higher awareness of the need for PPC. Conclusions: More education and practical work tailored to the different professional profiles are needed, with adjustments for specific subspecialist areas, especially where patients could be included in early PPC. Although additional studies are needed, we identified the main directions for the further implementation of PPC in clinical practice in our setting. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s00431-023-04806-7. Springer Berlin Heidelberg 2023-01-21 2023 /pmc/articles/PMC10023644/ /pubmed/36680577 http://dx.doi.org/10.1007/s00431-023-04806-7 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . |
spellingShingle | Research Meglič, Jakob Lisec, Ajda Lepej, Dušanka Loboda, Tanja Bertok, Sara Lešnik Musek, Petra Kreft Hausmeister, Ivana Oštir, Majda Ponjević, Tehvida Meglič, Anamarija Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia |
title | Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia |
title_full | Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia |
title_fullStr | Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia |
title_full_unstemmed | Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia |
title_short | Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia |
title_sort | challenges in establishing optimal pediatric palliative care at the university hospital in slovenia |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10023644/ https://www.ncbi.nlm.nih.gov/pubmed/36680577 http://dx.doi.org/10.1007/s00431-023-04806-7 |
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