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The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature

We present a novel comprehensive literature review of studies of the psychosocial functioning (PF) and quality of life (QoL) of patients with childhood glaucoma and their caregivers. Our findings demonstrate variable study quality and approach, as well as inconsistent results relating to the associa...

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Autores principales: McLaughlin, Danielle E., Semrov, Ana, Munshi, Hounsh, Patel, Annika J., Rahi, Jugnoo, Grajewski, Alana L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group UK 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10032631/
https://www.ncbi.nlm.nih.gov/pubmed/36949247
http://dx.doi.org/10.1038/s41433-023-02492-1
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author McLaughlin, Danielle E.
Semrov, Ana
Munshi, Hounsh
Patel, Annika J.
Rahi, Jugnoo
Grajewski, Alana L.
author_facet McLaughlin, Danielle E.
Semrov, Ana
Munshi, Hounsh
Patel, Annika J.
Rahi, Jugnoo
Grajewski, Alana L.
author_sort McLaughlin, Danielle E.
collection PubMed
description We present a novel comprehensive literature review of studies of the psychosocial functioning (PF) and quality of life (QoL) of patients with childhood glaucoma and their caregivers. Our findings demonstrate variable study quality and approach, as well as inconsistent results relating to the association of glaucoma-specific factors and sociodemographic variables with measured PF and QoL. Future studies should focus on the development of culturally cognizant and standardized assessment tools, execution of multi-center longitudinal studies with global representation, evaluation of PF and QoL among siblings and childhood glaucoma providers, and implementation of interventions to improve patient and caregiver PF and QoL.
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spelling pubmed-100326312023-03-23 The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature McLaughlin, Danielle E. Semrov, Ana Munshi, Hounsh Patel, Annika J. Rahi, Jugnoo Grajewski, Alana L. Eye (Lond) Review Article We present a novel comprehensive literature review of studies of the psychosocial functioning (PF) and quality of life (QoL) of patients with childhood glaucoma and their caregivers. Our findings demonstrate variable study quality and approach, as well as inconsistent results relating to the association of glaucoma-specific factors and sociodemographic variables with measured PF and QoL. Future studies should focus on the development of culturally cognizant and standardized assessment tools, execution of multi-center longitudinal studies with global representation, evaluation of PF and QoL among siblings and childhood glaucoma providers, and implementation of interventions to improve patient and caregiver PF and QoL. Nature Publishing Group UK 2023-03-22 2023-10 /pmc/articles/PMC10032631/ /pubmed/36949247 http://dx.doi.org/10.1038/s41433-023-02492-1 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Review Article
McLaughlin, Danielle E.
Semrov, Ana
Munshi, Hounsh
Patel, Annika J.
Rahi, Jugnoo
Grajewski, Alana L.
The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature
title The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature
title_full The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature
title_fullStr The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature
title_full_unstemmed The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature
title_short The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature
title_sort impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature
topic Review Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10032631/
https://www.ncbi.nlm.nih.gov/pubmed/36949247
http://dx.doi.org/10.1038/s41433-023-02492-1
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