Peyronie’s disease questionnaire: translation into Danish and cultural adaptation

BACKGROUND: Peyronie’s disease has an impact on men’s mental and physical health. AIM: We sought to translate the Peyronie’s Disease Questionnaire into Danish, adapt it to the Danish cultural setting, and test it in a Danish population. METHODS: Translation of the Peyronie’s Disease Questionnaire was performed according to the guidelines for adapting health status measures for use in languages other than the source language by Beaton et al. The validated American Peyronie’s Disease Questionnaire was developed to monitor patient symptoms after an intervention and to inspire a subsequent dialogue about physical and psychological symptoms with a healthcare provider, thereby allowing the patient and the healthcare professional to choose the best treatment. The expert committee agreed on a Danish version after cross-cultural adaptation. The Danish Peyronie’s Disease Questionnaire was sent by electronic mail to a preselected group of 41 men with Peyronie’s disease. OUTCOMES: After completing the questionnaire, 32 men participated in a video interview regarding the questionnaire and were asked to identify any problematic fields or areas open to misunderstanding. RESULTS: The Peyronie’s Disease Questionnaire underwent major modifications in light of the comments of the first 10 respondents. Thereafter, only minor changes were made until data saturation was reached after 27 of the 32 respondents had been interviewed. In 87% of respondents Peyronie’s disease bothered from the last time they had intercourse, and 93% of the men experienced being bothered by having intercourse less often. Peyronie’s disease made 73% of respondents feel bodily discomfort, and 88% had intercourse less often than they used to have due to Peyronie’s disease. CLINICAL IMPLICATIONS: The Peyronie’s Disease Questionnaire is a valuable tool in the crucial task of addressing Peyronie’s disease, providing insight into the mental and sexual health problems as well as physical challenges faced by patients. STRENGTHS AND LIMITATIONS: The interviewer’s modest experience in conducting interviews is believed to have been duly compensated for by continuous and accumulating learning-while-doing process because the same interviewer conducted all of the interviews and did so consecutively. CONCLUSIONS: Danish men expressed satisfaction with the questionnaire and found it valuable as a tool when visiting the doctor for the first time.