Cargando…

A Data Transformation Methodology to Create Findable, Accessible, Interoperable, and Reusable Health Data: Software Design, Development, and Evaluation Study

BACKGROUND: Sharing health data is challenging because of several technical, ethical, and regulatory issues. The Findable, Accessible, Interoperable, and Reusable (FAIR) guiding principles have been conceptualized to enable data interoperability. Many studies provide implementation guidelines, asses...

Descripción completa

Detalles Bibliográficos
Autores principales:	Sinaci, A Anil, Gencturk, Mert, Teoman, Huseyin Alper, Laleci Erturkmen, Gokce Banu, Alvarez-Romero, Celia, Martinez-Garcia, Alicia, Poblador-Plou, Beatriz, Carmona-Pírez, Jonás, Löbe, Matthias, Parra-Calderon, Carlos Luis
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications 2023
Materias:	Original Paper
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10034606/ https://www.ncbi.nlm.nih.gov/pubmed/36884270 http://dx.doi.org/10.2196/42822

Ejemplares similares

FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research
por: Alvarez-Romero, Celia, et al.
Publicado: (2022)

Predicting 30-Day Readmission Risk for Patients With Chronic Obstructive Pulmonary Disease Through a Federated Machine Learning Architecture on Findable, Accessible, Interoperable, and Reusable (FAIR) Data: Development and Validation Study
por: Alvarez-Romero, Celia, et al.
Publicado: (2022)

Current state and call for action to accomplish findability, accessibility, interoperability, and reusability of low carbon energy data
por: Schwanitz, Valeria Jana, et al.
Publicado: (2022)

Initiatives, Concepts, and Implementation Practices of the Findable, Accessible, Interoperable, and Reusable Data Principles in Health Data Stewardship: Scoping Review
por: Inau, Esther Thea, et al.
Publicado: (2023)

An Interoperability Platform Enabling Reuse of Electronic Health Records for Signal Verification Studies
por: Yuksel, Mustafa, et al.
Publicado: (2016)

Postmarketing Safety Study Tool: A Web Based, Dynamic, and Interoperable System for Postmarketing Drug Surveillance Studies
por: Sinaci, A. Anil, et al.
Publicado: (2015)

A Semantic Transformation Methodology for the Secondary Use of Observational Healthcare Data in Postmarketing Safety Studies
por: Pacaci, Anil, et al.
Publicado: (2018)

Workflows Allowing Creation of Journal Article Supporting Information and Findable, Accessible, Interoperable, and Reusable (FAIR)-Enabled Publication of Spectroscopic Data
por: Barba, Agustin, et al.
Publicado: (2019)

Ontology-Enriched Specifications Enabling Findable, Accessible, Interoperable, and Reusable Marine Metagenomic Datasets in Cyberinfrastructure Systems
por: Blumberg, Kai L., et al.
Publicado: (2021)

Initiatives, Concepts, and Implementation Practices of FAIR (Findable, Accessible, Interoperable, and Reusable) Data Principles in Health Data Stewardship Practice: Protocol for a Scoping Review
por: Inau, Esther Thea, et al.
Publicado: (2021)

Standard-based integration profiles for clinical research and patient safety
por: Daniel, Christel, et al.
Publicado: ( 201)

Findable Accessible Interoperable Re-usable (FAIR) diffraction data are coming to protein crystallography
por: Helliwell, John R., et al.
Publicado: (2019)

Findable Accessible Interoperable Re-usable (FAIR) diffraction data are coming to protein crystallography
por: Helliwell, John R., et al.
Publicado: (2019)

Findable Accessible Interoperable Re-usable (FAIR) diffraction data are coming to protein crystallography
por: Helliwell, John R., et al.
Publicado: (2019)

Findable Accessible Interoperable Re-usable (FAIR) diffraction data are coming to protein crystallography
por: Helliwell, John R., et al.
Publicado: (2019)

ENIGMA + COINSTAC: Improving Findability, Accessibility, Interoperability, and Re-usability
por: Turner, Jessica A., et al.
Publicado: (2021)

The EU Child Cohort Network’s core data: establishing a set of findable, accessible, interoperable and re-usable (FAIR) variables
por: Pinot de Moira, Angela, et al.
Publicado: (2021)

Ambient Findability
por: Morville, Peter
Publicado: (2005)

PDBe: improved findability of macromolecular structure data in the PDB
por: Armstrong, David R, et al.
Publicado: (2020)

An expandable approach for design and personalization of digital, just-in-time adaptive interventions
por: Gonul, Suat, et al.
Publicado: (2018)

Applying the FAIR4Health Solution to Identify Multimorbidity Patterns and Their Association with Mortality through a Frequent Pattern Growth Association Algorithm
por: Carmona-Pírez, Jonás, et al.
Publicado: (2022)

Making Common Fund data more findable: catalyzing a data ecosystem
por: Charbonneau, Amanda L, et al.
Publicado: (2022)

Standard-based EHR-enabled applications for clinical research and patient safety: CDISC – IHE QRPH – EHR4CR & SALUS collaboration
por: Daniel, Christel, et al.
Publicado: (2014)

Ten quick tips for making things findable
por: Lin, Sarah, et al.
Publicado: (2020)

Building findable websites: web standards, SEO, and beyond
por: Walter, Aarron
Publicado: (2008)

Addressing barriers in comprehensiveness, accessibility, reusability, interoperability and reproducibility of computational models in systems biology
por: Niarakis, Anna, et al.
Publicado: (2022)

Changes in Multimorbidity and Polypharmacy Patterns in Young and Adult Population over a 4-Year Period: A 2011–2015 Comparison Using Real-World Data
por: Mucherino, Sara, et al.
Publicado: (2021)

CureSCi Metadata Catalog–Making sickle cell studies findable
por: Pan, Huaqin, et al.
Publicado: (2022)

Architectural Properties for Data Reusability
por: Hughes, John Steven
Publicado: (2023)

Reusable data structures for C
por: Sessions, Roger
Publicado: (1989)

Harnessing Data Science Through Healthcare IT Interoperability
por: Taylor, Sheryl L.
Publicado: (2019)

The Issues of Interoperability and Data Connectedness for Public Health
por: Martin, Laurie T., et al.
Publicado: (2022)

Findability of UK health datasets available for research: a mixed methods study
por: Griffiths, Emily, et al.
Publicado: (2022)

Developing a standardized but extendable framework to increase the findability of infectious disease datasets
por: Tsueng, Ginger, et al.
Publicado: (2023)

An economy of details: standards and data reusability
por: Delgado, Ana
Publicado: (2022)

OSIRIS: A Minimum Data Set for Data Sharing and Interoperability in Oncology
por: Guérin, Julien, et al.
Publicado: (2021)

Comorbidity Patterns in Patients with Atopic Dermatitis Using Network Analysis in the EpiChron Study
por: Almenara-Blasco, Manuel, et al.
Publicado: (2022)

Smart Medical Information Technology for Healthcare (SMITH) : Data Integration based on Interoperability Standards
por: Winter, Alfred, et al.
Publicado: (2018)

Interoperable and accessible census and survey data from IPUMS
por: Kugler, Tracy A., et al.
Publicado: (2018)

Integration Framework of MES Toward Data Security Interoperation
por: Wei, Shuangyu, et al.
Publicado: (2020)

Cannot write session to /tmp/vufind_sessions/sess_qtgu7d22guo9nhnqpjfe1llpr3