Improving quality of life in patients with rare autoimmune liver diseases by structured peer-delivered support (Q.RARE.LI): study protocol for a transnational effectiveness-implementation hybrid trial

BACKGROUND: Psychosocial support is a crucial component of adequate rare disease care, but to date psychosocial support needs of this patient population are insufficiently met. Within Q.RARE.LI, we strive to evaluate the effectiveness of a structured, transdiagnostic, and location-independent psycho...

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Detalles Bibliográficos
Autores principales: Uhlenbusch, Natalie, Bal, Arpinder, Balogh, Boglárka, Braun, Annika, Geerts, Anja, Hirschfield, Gideon, Janik, Maciej K., Lohse, Ansgar W., Milkiewicz, Piotr, Papp, Mária, Poppe, Carine, Schramm, Christoph, Löwe, Bernd
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Study Protocol
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10039546/
https://www.ncbi.nlm.nih.gov/pubmed/36964518
http://dx.doi.org/10.1186/s12888-023-04669-0

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