Cargando…
Two Perspectives on Dravet Syndrome: Viewpoints from the Clinician and the Caregiver
Dravet syndrome (DS) is a severe genetic epilepsy characterized by early-life onset, seizures, and neurodevelopmental delays that have major impacts on affected children. DS is an incurable condition that requires a lifelong multidisciplinary approach involving both clinical and caregiver support. A...
Autores principales: | Bluvstein, Judith, Wenniger, Susanna |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Healthcare
2023
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10043082/ https://www.ncbi.nlm.nih.gov/pubmed/36795289 http://dx.doi.org/10.1007/s40120-023-00450-3 |
Ejemplares similares
-
Ataluren for drug‐resistant epilepsy in nonsense variant‐mediated Dravet syndrome and CDKL5 deficiency disorder
por: Devinsky, Orrin, et al.
Publicado: (2021) -
Dravet syndrome
por: Incorpora, Gemma
Publicado: (2009) -
Dravet Syndrome—The Polish Family’s Perspective Study
por: Paprocka, Justyna, et al.
Publicado: (2021) -
Caring for Children with Dravet Syndrome: Exploring the Daily Challenges of Family Caregivers
por: Domaradzki, Jan, et al.
Publicado: (2023) -
Caregivers’ Perspectives on the Impact of Cannabidiol (CBD) Treatment for Dravet and Lennox-Gastaut Syndromes: A Multinational Qualitative Study
por: Marshall, Jade, et al.
Publicado: (2023)