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The Burden of Caring for Individuals with Tuberous Sclerosis Complex (TSC) Who Experience Epileptic Seizures: A Descriptive UK Survey

INTRODUCTION: Tuberous sclerosis complex (TSC) is a rare multisystem genetic condition characterised by benign tumours; prevalent manifestations include epilepsy and neuropsychiatric disorders. This study examined the burden of TSC for primary caregivers and families, exploring the impact of charact...

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Detalles Bibliográficos
Autores principales:	Skrobanski, Hanna, Vyas, Kishan, Bowditch, Sally, Hubig, Lena, Dziadulewicz, Edward, Fish, Louise, Takhar, Pooja, Lo, Siu Hing
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer International Publishing 2023
Materias:	Original Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10043106/ https://www.ncbi.nlm.nih.gov/pubmed/36757566 http://dx.doi.org/10.1007/s41669-023-00387-1

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