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Title: Caring for Children with Cerebral Palsy: A Challenge to Caregivers in Rural Areas of South Africa

Background: In South Africa, children with cerebral palsy are nested within a family setting by immediate relatives, particularly in the rural areas. These immediate relatives are regarded as caregivers and are not trained with regard to providing care to children with special needs. Therefore, they...

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Autores principales: Manyuma, Duppy, Maluleke, Mary, Raliphaswa, Ndidzulafhi Selina, Masutha, Thingahangwi Cecilia, Rangwaneni, Mphedziseni Esther, Thabathi, Takalani Eldah, Lavhelani, Ndivhaleni Robert
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10046905/
https://www.ncbi.nlm.nih.gov/pubmed/36979998
http://dx.doi.org/10.3390/children10030440
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author Manyuma, Duppy
Maluleke, Mary
Raliphaswa, Ndidzulafhi Selina
Masutha, Thingahangwi Cecilia
Rangwaneni, Mphedziseni Esther
Thabathi, Takalani Eldah
Lavhelani, Ndivhaleni Robert
author_facet Manyuma, Duppy
Maluleke, Mary
Raliphaswa, Ndidzulafhi Selina
Masutha, Thingahangwi Cecilia
Rangwaneni, Mphedziseni Esther
Thabathi, Takalani Eldah
Lavhelani, Ndivhaleni Robert
author_sort Manyuma, Duppy
collection PubMed
description Background: In South Africa, children with cerebral palsy are nested within a family setting by immediate relatives, particularly in the rural areas. These immediate relatives are regarded as caregivers and are not trained with regard to providing care to children with special needs. Therefore, they have to find ways to adapt to their new roles of caregiving using the available resources. The aim of this paper is to present the challenges encountered by caregivers of children with cerebral palsy in rural areas of South Africa. Methods: This qualitative, explorative, descriptive, and contextual study included 10 caregivers for children with cerebral palsy who were purposively recruited from the three respective hospitals in Vhembe District within Limpopo Province. Data were collected through individual in-depth interviews and analysed using a thematic approach. Ethical considerations and measures to ensure trustworthiness were upheld throughout the study. Results: Four themes emerged from the study, namely economic problems facing caregivers; health problems encountered by caregivers; maltreatment of caregivers by community members, as well as access to transport for caregivers and children. Conclusion: Participants narrated that caring for a child with cerebral palsy is not an easy task for the caregiver, particularly in the rural areas of South Africa. They encounter various challenges as they strive to provide quality care to the children that they are caring for. An investigation is recommended concerning the kind of model which should be developed to support caregivers in caring for children with cerebral palsy in the rural areas.
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spelling pubmed-100469052023-03-29 Title: Caring for Children with Cerebral Palsy: A Challenge to Caregivers in Rural Areas of South Africa Manyuma, Duppy Maluleke, Mary Raliphaswa, Ndidzulafhi Selina Masutha, Thingahangwi Cecilia Rangwaneni, Mphedziseni Esther Thabathi, Takalani Eldah Lavhelani, Ndivhaleni Robert Children (Basel) Article Background: In South Africa, children with cerebral palsy are nested within a family setting by immediate relatives, particularly in the rural areas. These immediate relatives are regarded as caregivers and are not trained with regard to providing care to children with special needs. Therefore, they have to find ways to adapt to their new roles of caregiving using the available resources. The aim of this paper is to present the challenges encountered by caregivers of children with cerebral palsy in rural areas of South Africa. Methods: This qualitative, explorative, descriptive, and contextual study included 10 caregivers for children with cerebral palsy who were purposively recruited from the three respective hospitals in Vhembe District within Limpopo Province. Data were collected through individual in-depth interviews and analysed using a thematic approach. Ethical considerations and measures to ensure trustworthiness were upheld throughout the study. Results: Four themes emerged from the study, namely economic problems facing caregivers; health problems encountered by caregivers; maltreatment of caregivers by community members, as well as access to transport for caregivers and children. Conclusion: Participants narrated that caring for a child with cerebral palsy is not an easy task for the caregiver, particularly in the rural areas of South Africa. They encounter various challenges as they strive to provide quality care to the children that they are caring for. An investigation is recommended concerning the kind of model which should be developed to support caregivers in caring for children with cerebral palsy in the rural areas. MDPI 2023-02-24 /pmc/articles/PMC10046905/ /pubmed/36979998 http://dx.doi.org/10.3390/children10030440 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Manyuma, Duppy
Maluleke, Mary
Raliphaswa, Ndidzulafhi Selina
Masutha, Thingahangwi Cecilia
Rangwaneni, Mphedziseni Esther
Thabathi, Takalani Eldah
Lavhelani, Ndivhaleni Robert
Title: Caring for Children with Cerebral Palsy: A Challenge to Caregivers in Rural Areas of South Africa
title Title: Caring for Children with Cerebral Palsy: A Challenge to Caregivers in Rural Areas of South Africa
title_full Title: Caring for Children with Cerebral Palsy: A Challenge to Caregivers in Rural Areas of South Africa
title_fullStr Title: Caring for Children with Cerebral Palsy: A Challenge to Caregivers in Rural Areas of South Africa
title_full_unstemmed Title: Caring for Children with Cerebral Palsy: A Challenge to Caregivers in Rural Areas of South Africa
title_short Title: Caring for Children with Cerebral Palsy: A Challenge to Caregivers in Rural Areas of South Africa
title_sort title: caring for children with cerebral palsy: a challenge to caregivers in rural areas of south africa
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10046905/
https://www.ncbi.nlm.nih.gov/pubmed/36979998
http://dx.doi.org/10.3390/children10030440
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